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  1. Jonathan Edwards

    What we're not being told about ME - UnHerd (Tom Chivers)

    He talked to several of us and we could have explained if he had asked. He even put this weird subtitle in suggesting that it was NICE that was responsible for the poor evidence. I don't think he really understands the big picture. Let's face it, if he was a serious investigative journalist he...
  2. Jonathan Edwards

    What we're not being told about ME - UnHerd (Tom Chivers)

    Tom Chivers seems to be remarkably naive. I could have explained to him all the stuff he complains about not knowing. I fear he likes to find a story and run it without actually getting to grips with the background.
  3. Jonathan Edwards

    Home Improvements

    My decorators always move the furniture. Usually they put it all in the middle of a room with dust sheets over. And that's two lots of decorators. I think you should be able to find someone who will although it might depend on where you are.
  4. Jonathan Edwards

    Sense about Science (UK) and subjective outome measures

    I read the overdiagnosis comment, together with the one about subjective measure as referring to the PACE trial having been marked down on these grounds - with the risk the this meant that a subgroup who really would benefit from CBT and GET might not get it because of the evidence rating.
  5. Jonathan Edwards

    Sense about Science (UK) and subjective outome measures

    But it is a myth, isn't it? We have been asking patients about pain and fatigue since trials began.
  6. Jonathan Edwards

    Sense about Science (UK) and subjective outome measures

    It is certainly nonsense in the sense that there has been no 'wider shift' to subjective measures. Subjective measures have been used all along and are critically important, but not enough. I was trying to find out who tweeted that. It shows a remarkable medical science illiteracy.
  7. Jonathan Edwards

    Raynaud's Syndrome in Fibromyalgia and ME/CFS

    The article at the top is a commercial health site muddle. If you have blueness and coldness of more than hands and feet it is probably not Raynaud's. Raynaud's is a very specific problem relating to digital sympathetic nerves and is best identified by a yellowish-white phase, followed by...
  8. Jonathan Edwards

    What we're not being told about ME - UnHerd (Tom Chivers)

    I wonder what Michael Sharpe thinks the commentators have missed in the PACE paper? Maybe the truncated Y axis? Maybe the inappropriate comparator arms? Maybe the absence of any significant objective changes? Hard to say.
  9. Jonathan Edwards

    What we're not being told about ME - UnHerd (Tom Chivers)

    The subtitle to the article quoted by @Adam pwme was clearly an error, maybe by a subeditor. Tom said he would get it changed, although not seen that so far.
  10. Jonathan Edwards

    History of NICE decision to set up 2020 Committee

    I guess Tom Chivers the journalist.
  11. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Well that seems to make clear what stakeholder really means, despite the woke gloss. It means money.
  12. Jonathan Edwards

    Oxaloacetate

    Well what about potato?
  13. Jonathan Edwards

    Oxaloacetate

    I don't understand this. If most of our food energy goes through the citric acid cycle I would guess that we make use of about 500 gram of oxaloacetate molecules a day. Yes, part of the molecule gets recycled but if there was a block to making oxaloacetate that needed topping up with...
  14. Jonathan Edwards

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    It may be that Hammond realises that for people like him it is a better strategy to let the guideline be published and make use of all the loopholes to carry on the same rather than make a big hoo-hah that just brings all the issues to people's attention.
  15. Jonathan Edwards

    2018: Discussion on the NICE procedure: what to expect next?

    It just means that different people are shouting louder at RCP I think.
  16. Jonathan Edwards

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Was it sauté brain this time @Trish - you really should be careful of these moderators.
  17. Jonathan Edwards

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    I think he was misunderstanding a response to his comment that the science was uncertain. He thought somebody was suggesting that the science of ME was sorted. What is sorted is the science of CBT and GET - they don't work. Edit: what hinterland said!
  18. Jonathan Edwards

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    'with a huge range of causation' So Dr Hammond can now divine the cause of each patient's illness and base treatment on it? Goodness knows what the bit about diagnostic tests was about. He seemed to miss the point that there was certainty about treatments not having a useful effect.
  19. Jonathan Edwards

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Thanks for sending the whole Hammond piece. Yes, it is dreadful. Drivel dressed up as 'common sense'. This is just what is problematic - appearing to provide everything patients might want but in fact providing untested treatment that probably achieves nothing. At least he seems to agree that...
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