Could there also be differences between riding a bike and running? I can run and was able to use my stair master (years ago) without being out of breath, but riding my stationary bike put me out of breath quickly.
Are they measuring pwME/POTS and pwME w/o POTS?
I never had issues with my breathing when I was exercising with ME.
The gas exchange is interesting. This is what Mark Van Ness discusses in his videos.
@Andy
Can you understand how this might be misinterpreted by some? Do the 'experts' on "PEM" understand that PEM (as defined by the ME community) is life long?
As defined by the Heart Cardiovascular Institute:
Exercise vs. Physical Activity
According to the American College of Sports...
Exactly this. I'm able to power walk for one hour 2 to maybe 3 times a week depending on how I feel. But I don't know whether that is a good or bad thing to do. I don't think I feel worse off, but who knows really? So I cut my walking to 40 minutes and live on hope that it's ok.
I had a sudden viral vertigo onset and 'extremely' elevated anti-thyroid antibodies 6 months after onset. Had a thyroid scan and was told I had a viral infection. I 'recovered' from the initial virus 9 months later only to have a major relapse shortly after returning to work. So 1 1/2...
Yes, I agree.
"If you don’t experience PEM, you can gradually increase your level of activity or exercise to improve your fitness levels"
They also include exercise.
Whether someone fits the 'current definition' of ME or not doesn't mean they don't have ME, particularly in the early stages. I didn't experience PEM for 10 years, but I clearly had ME and now going on 30 years. It was in the cards from day one. That is my experience.
The marathon...
@Peter Trewhitt
What do you mean by 'at risk for ME". How do they determine who is at risk and who can increase and who can't? "PEM"? Why give advice regarding exercise in the early stages when they don't understand PEM to begin with?
The marathon runner in that video I posted was...
@Andy
"If you don’t experience PEM, you can gradually increase your level of activity or exercise to improve your fitness levels"
We don't understand the pathophysiological of PEM, and yet they're using it as a general 'scientific term' to advise patients on exercise.
If a patient is in...
Posts moved from the WHO news thread
"If you don’t experience PEM, you can gradually increase your level of activity or exercise to improve your fitness levels"
Well, I didn't experience PEM for 10 years until I started exercising . . . so wrong again.
“This virus doesn’t end once you get discharged from the hospital or once you get over the initial acute symptoms,” says Putrino. “This virus persists.” He notes that while the recent Lancet study only focused on hospitalized COVID-19 patients, other, albeit smaller, studies have shown that...
It doesn't work for mild or moderate either. A persons improvement has nothing to do with pacing, pacing prevents harm. A patients improvement simply occurs on its own.
My Oxaloacetate levels on my OAT is at -33% (below normal range).
Taking a supplement does zero to correct this.
Dr. Kaufman is suffering from chronic recycling syndrome.
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