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  1. Mij

    Dane Cook's analysis of exercise data of the CDC's MCAM study

    Could there also be differences between riding a bike and running? I can run and was able to use my stair master (years ago) without being out of breath, but riding my stationary bike put me out of breath quickly.
  2. Mij

    Dane Cook's analysis of exercise data of the CDC's MCAM study

    Are they measuring pwME/POTS and pwME w/o POTS? I never had issues with my breathing when I was exercising with ME. The gas exchange is interesting. This is what Mark Van Ness discusses in his videos.
  3. Mij

    Fluctuating food sensitivities, theories?

    @borko2100 Do you know if you have low testosterone?
  4. Mij

    Fluctuating food sensitivities, theories?

    The symptoms that @borko2100 described were my menopause symptoms. Not suicidal, but very dark moods that I never experienced in my life before meno.
  5. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    My understanding is that it also prevents mutation and new variants? Does this make the current vaccine less effective against the new variants?
  6. Mij

    PEM discussion thread - post-exertional malaise

    @Andy Can you understand how this might be misinterpreted by some? Do the 'experts' on "PEM" understand that PEM (as defined by the ME community) is life long? As defined by the Heart Cardiovascular Institute: Exercise vs. Physical Activity According to the American College of Sports...
  7. Mij

    PEM discussion thread - post-exertional malaise

    Exactly this. I'm able to power walk for one hour 2 to maybe 3 times a week depending on how I feel. But I don't know whether that is a good or bad thing to do. I don't think I feel worse off, but who knows really? So I cut my walking to 40 minutes and live on hope that it's ok.
  8. Mij

    PEM discussion thread - post-exertional malaise

    I had a sudden viral vertigo onset and 'extremely' elevated anti-thyroid antibodies 6 months after onset. Had a thyroid scan and was told I had a viral infection. I 'recovered' from the initial virus 9 months later only to have a major relapse shortly after returning to work. So 1 1/2...
  9. Mij

    PEM discussion thread - post-exertional malaise

    Yes, I agree. "If you don’t experience PEM, you can gradually increase your level of activity or exercise to improve your fitness levels" They also include exercise.
  10. Mij

    PEM discussion thread - post-exertional malaise

    Whether someone fits the 'current definition' of ME or not doesn't mean they don't have ME, particularly in the early stages. I didn't experience PEM for 10 years, but I clearly had ME and now going on 30 years. It was in the cards from day one. That is my experience. The marathon...
  11. Mij

    PEM discussion thread - post-exertional malaise

    There is a big difference between increasing level of activity and increasing level of "fitness'.
  12. Mij

    PEM discussion thread - post-exertional malaise

    @Peter Trewhitt What do you mean by 'at risk for ME". How do they determine who is at risk and who can increase and who can't? "PEM"? Why give advice regarding exercise in the early stages when they don't understand PEM to begin with? The marathon runner in that video I posted was...
  13. Mij

    PEM discussion thread - post-exertional malaise

    @Andy "If you don’t experience PEM, you can gradually increase your level of activity or exercise to improve your fitness levels" We don't understand the pathophysiological of PEM, and yet they're using it as a general 'scientific term' to advise patients on exercise. If a patient is in...
  14. Mij

    PEM discussion thread - post-exertional malaise

    Posts moved from the WHO news thread "If you don’t experience PEM, you can gradually increase your level of activity or exercise to improve your fitness levels" Well, I didn't experience PEM for 10 years until I started exercising . . . so wrong again.
  15. Mij

    Implications of Innate Immunity in Post-Acute Sequelae of Non-Persistent Viral Infections, 2021, Hirschenberger et al

    I had a hs-CRP blood test done years ago to measure low levels of inflammation.
  16. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    “This virus doesn’t end once you get discharged from the hospital or once you get over the initial acute symptoms,” says Putrino. “This virus persists.” He notes that while the recent Lancet study only focused on hospitalized COVID-19 patients, other, albeit smaller, studies have shown that...
  17. Mij

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management, 2021, Bateman et al

    It doesn't work for mild or moderate either. A persons improvement has nothing to do with pacing, pacing prevents harm. A patients improvement simply occurs on its own.
  18. Mij

    Oxaloacetate

    My Oxaloacetate levels on my OAT is at -33% (below normal range). Taking a supplement does zero to correct this. Dr. Kaufman is suffering from chronic recycling syndrome.
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