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A senior in my building owns a dog named Wessely.

@Creekside There is a thread here discussing experiences with black cumin. Dr. Alain Moreau has an interest in thymoquinone, a chemical found in black cumin seeds. Nigella sativa (also known as black cumin).

to add . . . Cognitive impairment is a common and disabling non-motor feature in patients with Parkinson's and other neurodegenerative disorders who experience orthostatic hypotension. And there are many different types of OI with very few specialists who can diagnosis them.

Could immediate PEM be the result to those who have a very lowered 'energy envelope'? I didn't experience PEM during the early years of PVFS, my energy envelope was wider because I hadn't caused any 'injury' (yet) from exercising. I repeatedly went over my limit and this was when my...

Do you have OI or autonomic issues? Lifting my arms above my head gives me a PEM-like feeling. I need to lie down immediately after for an hour to recover. For me it doesn't make any difference which muscles I use. I can't do any resistance-type exercise except for light weights from...

Investigators at @NTUSg describe another case of postural tachycardia in a patient with COVID-19. This is the second case after the one described by @StanfordMed researchers. https://link.springer.com/article/10.1007/s10286-020-00733-x

My bolding answers: Excellent questions.

I was able to read the tweet when you first posted it. It disappeared pretty fast.

It was tweeted from a suspended account.

Well the term post exertional MALAISE is the problem.

I am right to assume that PEM is just as severe whether you are mild, moderate or severe? I don't describe myself as severe, but when I'm in PEM, I want to be put out for 3 days so that I don't have to live through it. It is beyond distressful and quite scary at times.

We are thinking about you @Rosie :hug:

I don't wear watches during the winter when I go for my walks because the battery freezes and the clock stops working . . . until my legs start feeling weak and I notice that it's been 7:05 pm for the last 40 minutes :bawling: Bring on the PEM.

Once the adrenaline surge has occurred, it takes a long time to wear off, and judgement can be affected- we get lost in the moment. I have many timers and watches.

Perhaps we could list our cognitive PEM symptoms. I never understood the meaning of "brain fog". I can't absorb or process information during PEM, my brain feels ill. I don't have memory issues, but years ago I had to call FED EX back 3 times because I wrote down the wrong phone...

Yes. The thing is that pathophysiology of PEM is there from day one of developing ME, even if you don't experience it until 11 years into the illness like I did. ME is PEM.

Moved post @Jonathan Edwards What is your opinion on mastocytosis? My understanding is that it is different to MCAS. I've read that mastocytosis can be aggravated by over exertion, changes in temperature etc.

How do you feel when you're lying down reading with your head propped up a little?

To add . . . cognitive PEM does affect my gait and at times cause sore/tired calf muscles if I really overdo.

I have never experienced delayed cognitive PEM unless it was combined with physical PEM. I recover from cognitive PEM within an hour if I rest, wear ear plugs in a dark room. The physical PEM is delayed by approx 12-16 hours and takes a minimum of 3 days to recover. I feel...