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The video states that too much rest 'will slow your recovery and lose muscle mass increasing your risk of injury'. How ironic that they mention 'injury'. :emoji_rolling_eyes: (this emoji has become my favourite on this forum). I lost very little muscle mass over the course of many years of...

https://creakyjoints.org/living-with-arthritis/coronavirus/patient-perspectives/covid-19-long-hauler-chronic-fatigue-syndrome/

An interesting observation for me is that I didn't have sleep issues when I was in PEM, I slept ok. My issues with sleep now is when I overdo myself mentally and physically during the day and don't get proper rest in between activities, my brain becomes wired-up like I'm on adrenaline...

My sleep switched off like a light switch overnight after sleeping like a baby for 11 years with ME. Poof, it was gone. I completely lost the ability to fall asleep and had to take trazodone for 1 1/2 years every night. My natural sleep eventually came back and I no longer needed meds...

Possibly because my ME doctor characterized my history as relapsing-remitting and permanent? I was also approved for the Disability Tax Credit which has a very restrictive criteria and difficult to obtain.

I was diagnosed with CFS/PVFS in 1992 for my Federal disability benefits by an ME doctor who was one of the authors of the 2003 Canadian Consensus Criteria for ME. I was approved immediately. The diagnosis of CFS still remains on my medical file today.

(referring to the BMJ letter) Michael Peel, general practitioner Author affiliations mpeel@doctors.org.uk In inner London, where we saw some of the earliest cases of covid-19 in the United Kingdom, we are now seeing patients with prolonged symptoms like those described by Salisbury, who...

I hope in the near future that they find biomarkers for the pathophysiology of PEM and rename it. Perhaps change the definition of ME to include the new biomarkers for PEM, and then get rid of CFS for good.

I've had many variations of sleep disorders in the last 28 years. I've never needed heavy drugs, only trazodone to initiate sleep. In general, my sleep is pretty good but menopause changed all that.

They are certainly not describing ME "fatigue". https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4295717/

I've seen both, particularly with moderate exercise.

Are they stuck on the myth that exercise 'improves and boosts the immune system" along with a healthy diet? Because it doesn't when you're ill or healthy.

Will people agree that 30+ years is realistic though?

The best part is that the cost of the steroid drug is cheap.

Out of interest @Mij , how long has it taken to get to this state? Hi @Amw66 Sorry for the delay in replying. I just saw your message today. I'll have to break it down a little. Early in the illness I started with 5-15 minute regular walking (5.5 years after onset) once a week after...

This obsession with exercise is disturbing. There is a PACE exercise program "Progressively Accelerating Cardiopulmonary Exertion" developed by Al Sears in the US, so there might misunderstandings are all over the net depending which country? Be Strong, in other words literally...

After the Chris Como show Don Lemon asked if these symptoms were mostly psychosomatic. Chris Como's response "NO".

It works fine for me.

Last night on CNN Chris Como interviewed Dr. William Li who says it appears that COVID is a 'blood vessel disease' causing severe damage to the vascular system, which would explain why the virus seems to be affecting all organs. Dr Li is an internal medicine physician and a research...

Post copied from the Possibility of ME or PVFS after COVID-19 thread Last night on CNN Chris Como interviewed Dr. William Li who says it appears that COVID is a 'blood vessel disease' causing severe damage to the vascular system, which would explain why the virus seems to be affecting all...