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If other types of antibodies are raised, does that mean the virus is reactivated, or simply that the immune system is pumping out more antibodies? Edit. I think Jonathan's post has just answered this.

Charles S writes I think we have to be careful here. My feeling is that for most long-Covid patients the mechanism(s) driving this activity-induced fatigue is probably not going to be the same as that/those in ME/CFS; the former seems to be associated with damage and impairment of the...

Two responses to the Miller, Garner, and White Guardian letter, one from Charles Shepherd. https://www.theguardian.com/society/2021/mar/14/when-rest-may-be-best-for-post-viral-fatigue

Yes, I agree with everything you've said. Looking for patterns is absolutely natural. In fact as humans we often see patterns that aren't there. And the point about obsessing over symptoms — (i) i think there is (recent?) evidence this is no more significant in ME/CFS than other illnesses or in...

I'm not denying anyones symptoms, so I'm sorry if it came across that way. I am simply acknowledging that this phenomenon exists. If you've found what you think is a causal link between something and your symptom severity, then that's great. Paul Garner thinks he has found a causal link between...

Precisely. He was at the optimal time for recovery from PVFS.

Actually, I do recognise something similar. Especially from patient groups on FB! Some patients can be way too fast to attribute their symptom fluctuations to all sorts - something they ate, something they did, mouldy wall, changes in the weather, new supplement, etc. They can get really worked...

Another patronising study name.

What I found most interesting about the letter was the suggestion that GET should be rolled out in long-Covid clinics before any clinical trial could test its efficacy. That seems wrong to me.

The key here is the argument that the *trials* don't show evidence of harms. I think we all know many reasons why they might not, but this needs to be communicated properly by someone who knows about this stuff.

We usually have people on hard. @Robert 1973 is always very good with letters. I'd do it myself but I don't know the trials inside out. The elephant in the room is that the patient experience / surveys are completely disparate with the trial findings as far as efficacy and 'harm'.

I hope someone who knows these trials inside out can put together a response (perhaps in a Letter to the Guardian).

I need to stop checking Twitter for the sake of my health.

https://tenor.com/view/brexit-politics-british-british-politics-election-gif-15430636

Yeah. They're all six months old, but I don't expect them to change anytime soon. It is my understanding that these have been revised with the draft guidelines in mind.

I have a friend in the states who is really struggling with post-Covid POTS.

If you mean the documents just linked by SlySaint, then no - these are fresh out the oven / cutting edge!

I actually found the original 2020 programme on my laptop. No Sonya or Chris.

Just to expand a bit; some of us in the CMRC PAG are keen to work with BACME to really drill home the message that they have to change. I think Nina Muirhead has been in conversation with them, possibly with regards to medical education. Now is the right time to be having these conversations...

I think it's good that Chris Ponting and Sonya Chowdhury are presenting. Clearly BACME still hasn't got the message. I will see if we can make progress on this through the CMRC Patient Advisory Group, as we have contact with Chris and Sonya. I don't think boycotting is the right approach.