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  1. rvallee

    The GoodHope Exercise and Rehabilitation (GEAR) Program for People With EDS and Generalized Hypermobility Spectrum Disorders 2022 Mittal et al

    Old wine in the same old bottle. Always the same old wine in the same old model. At what point should it be pointed out that it's either insane or pathological level of lying to endlessly present the exact same thing with the same label and pretending it's not the exact same thing every single...
  2. rvallee

    The Chrysalis Effect

    I guess that by having the healthcare system send them clients they don't need to advertise and as we sadly know, BS claims without evidence are A-OK in medicine, or at least some are, immune from that ruling.
  3. rvallee

    Taking the pain out of data sharing, 2022 Matthew Hutson

    Not sure if the FDA but yes this is a recent change, for anyone living in the US, you now have full access to your medical records without restrictions or conditions. This is very recent, as in in recent weeks. It's technically supposed to be friction-free, no need to justify anything. Edit...
  4. rvallee

    BJGP LONG READ ‘Delicate diagnosis’: avoiding harms in difficult, disputed, and desired diagnoses, BJGP Life, 7 October 2022

    I'm guessing they don't mean CBT & GET here, or the excessive amounts of psychoactive drugs they are forcing down on us, but I am baffled as to what else they could possibly mean, since there is nothing else happening and this is obviously not our responsibility anyway. Seems like there's a lot...
  5. rvallee

    Mass social media-induced illness presenting with Tourette-like behavior 2022 Fremer et al

    Very abnormal to frame a hypothesis as a fact in the abstract. Because of course it's not a hypothesis, it's an assumption asserted as fact that is the starting point, a conclusion in search of evidence. Most of the assertions are fully speculative, how in the hell can anyone seriously claim...
  6. rvallee

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    It's probably not worth doing it alone. In my case literally impossible with brain fog. This would be a very smart thing to do with the right supervision, in a program meant to learn and produce useful knowledge with scientific rigor and very careful record-keeping. Unfortunately, we can't...
  7. rvallee

    The Chrysalis Effect

    It's absurd that it doesn't seem to bother anyone how this fits in perfectly with the Goop crowd with healing crystals and whatever, that the BPS model is clearly and unambiguously alternative medicine. The death of expertise, at the hands of experts, funded with public money. Good grief.
  8. rvallee

    Taking the pain out of data sharing, 2022 Matthew Hutson

    No, it's not. Not even a bit. This is my expertise. 50 years ago? Yeah, annoying and technically fraught with time-consuming labor. Today? It's trivial. Zero difficulty here. The difficulty here is entirely human, political. See? Zero technical difficulties mentioned here. And the second to...
  9. rvallee

    Long Covid in the media and social media 2022

    It's annoying how this fact is so rarely pointed out. Most of the risks people insure themselves against, some of them at a cost of hundreds or even thousands per year, are far less likely than the risk of Long Covid, which people technically pay nothing to insure themselves against. Risk of...
  10. rvallee

    Bias was reduced through the removal of subjective elements from the outcome definition, Kahan et al, 2016

    In other words: putting the scale out of reach of hands make them less likely to tip the scale whenever convenient. It's wild that this will either be ignored, or be very controversial. Because removing the ability of researchers to influence outcomes of their experiments would mean the end of...
  11. rvallee

    Prevalence of MUS in adults who are high users of healthcare services and magnitude of associated costs: a systematic review 2022 Jadhakhan et al

    It's often said as a joke but this is basically saying "water is wet" but being unable to process what it means. Amazing. And I see that they are now moving on to calling this a syndrome, a generic, vague list of issues medicine has yet to understand. And they are pretending that it's all one...
  12. rvallee

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Monaghan and Strain seem like a bit of progress. I still don't trust them one bit.
  13. rvallee

    Pulse Today ("the leading publication for GPs in the UK"): "Long Covid: Explaining the unexplainable?"

    Sometimes the comments tell the story better than the article. It's easy to see why little progress is happening considering how much ignorance and indifference there is to what is obviously a taboo subject. A little knowledge can be very dangerous in the wrong hands. And it's frankly becoming...
  14. rvallee

    Factors that influence how relationships adjust to a diagnosis of chronic fatigue syndrome: A grounded theory, Swinton, 2022 (thesis)

    Relationships, uh? I remember the concept. In the before time. No more. That's how it affected my relationships. No more and with no end in sight, thanks to this dystopian nightmare. Probably without the discrimination and pseudoscience it would have been OK. But the discrimination and lies...
  15. rvallee

    Long Covid in the media and social media 2022

    I'm not really sure it can be said that Long Covid has actually helped people suffering from Long Covid. It's pretty obvious that the exact same dynamic is happening: those who recover, recover naturally, and those who don't are thrown down the same trash chute they send us. There is still just...
  16. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    Continuing the same tradition that was in effect with us, Internet trolls are pretty much all about those 3, the same as deniers in the medical profession: spares the self-employed (sealions about employment status), vaccination status (denial of LC by the medical profession has lead to...
  17. rvallee

    Long COVID: defining the role of rheumatology in care and research (2022) Calabrese et Calabrese

    Actually, professionals should work on professional stuff. Providing "empathy" and "validation" is not the stuff expected of professionals and, sadly, they cannot do this anyway. "Hopes and dreams" medicine is just as useless as "thoughts and prayers" medicine. From his comments on Twitter...
  18. rvallee

    Sore throats swollen glands

    Mine too but when I mentioned it to my GP she dismissed it saying it's probably my salivary glands. I'm not sure how much better it would be but looking at pictures of swollen lymph nodes it seems spot on. Mine are almost always pretty hard and tender. I don't think this information is often...
  19. rvallee

    News from Scandinavia

    Bendt went from chief physician to failed patient: 'It's some damned bullshit' https://www.bt.dk/samfund/bendt-gik-fra-overlaege-til-svigtet-patient-det-er-noget-forbandet-svineri In Denmark, the National Board of Health recommends graduated exercise and cognitive behavioral therapy as part of...
  20. rvallee

    Long Covid, a great imitator of the 21th century 2022 Goldman

    Yeah, it's almost like the symptoms of infectious illness are common to infectious illnesses, or something like that. This conflicts with the algorithm of mental illness which nowadays essentially consists of: the common symptoms of illness. But if there's one thing a forest looks like, it's...
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