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  1. rvallee

    Open Protocol: Multimodal MRI of myalgic encephalomyelitis/chronic fatigue syndrome: A cross-sectional neuroimaging study 2022 Shan et al

    Isn't a 3 Tesla magnet too low resolution, though? IIRC anomalies in pwME have usually been seen only at 7T when using MRI?
  2. rvallee

    USA: Massachusetts ME/CFS & FM Association news

    This framing of a "parallel pandemic" has been growing a bit lately and it's so damn weird. Like labeling the flooding after a storm as a separate event from the storm itself. This only serves to create a false separation between the consequences of maximizing the spread of COVID.
  3. rvallee

    International, multidisciplinary Delphi consensus recommendations on non-pharmacological interventions for fibromyalgia, 2022, Kundakci et al

    This bit is especially delusional and frankly devious: Exactly as "personalized" as a fortune cookie or a psychic séance. Without the lies none of this would work but still: the damn lying all the time, so many lies, damned lies and statistics.
  4. rvallee

    International, multidisciplinary Delphi consensus recommendations on non-pharmacological interventions for fibromyalgia, 2022, Kundakci et al

    Have given up a looooooong time ago. Just the same mindless crap over and over again. In what world do these people think "education" on nonsense is treatment? And the continuing obsession with magical "sleep hygiene" again? Can't even say "at least you tried". This is phoning in phoning it in...
  5. rvallee

    An international study of post-COVID sleep health, 2022, Alzueta et al

    Ugh. Disappointing that this is still mostly unaddressed and investigated superficially. Lots of people reported some weird insomnia that lasted for days, just complete inability to fall asleep or feel somnolent at all, like the sleep switch turned off. I had a similar episode that in hindsight...
  6. rvallee

    Circadian skin temperature rhythm and dysautonomia in [ME/CFS]: ... endothelin-1 in vascular dysregulation, 2023, Cambras et al

    That can't be right. You can't be a healthy control and have POTS. Lots of people with dysautonomia don't even meet the criteria for increased heart rate because it falls short of the threshold. Odd.
  7. rvallee

    Cognitive Behavioural Therapy to Optimize Post-Operative Fracture Recovery (COPE): Protocol for a Randomized Controlled Trial, 2022, Busse et al

    So that's the same Busse we've been discussing in other threads? A chiropractor, funded by our equivalent of the NIH? Who, somehow, despite having no relevant expertise, thinks he can define core outcomes for research in ME? Medicine has truly lost the plot. We are at the thoughts and prayers...
  8. rvallee

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    I used to get them regularly, maybe every 3 months or so, and it's been a while so it's possible they stopped it.
  9. rvallee

    Cognitive Behavioural Therapy to Optimize Post-Operative Fracture Recovery (COPE): Protocol for a Randomized Controlled Trial, 2022, Busse et al

    I'll predict the conclusion right here: negative findings on all objective outcomes, a trend towards the positive on secondary subjective outcomes (squinting may be necessary), more research will be needed to figure out responders from non-responders, it's promising and all that. Oh, and of...
  10. rvallee

    Commentary: Graded Exercise Therapy and Cognitive Behaviour Therapy Do Not Improve Employment Outcomes in ME/CFS, 2022, Tuller and Vink

    The response to how employment data are unreliable because they are economic data points, rather than medical, is especially malicious, as they are implying that those people could work if they wanted to, that the people who do not get back to work but "improve" based on their subjective...
  11. rvallee

    At what point could someone with ME have somatic symptom disorder?

    I have seen a few people over the years who clearly are not coping well and show excessive worry. As a ratio of all pwME I would say it's less than 5%, to some degree, and less than 1% at a level where even I would recommend some counseling, although always with someone specialized in chronic...
  12. rvallee

    Functional neurological symptoms as initial presentation of Creutzfeldt-Jakob disease: case series 2022 Gómez-Mayordomo et al

    It can avoid costly investigations. As far as I can tell, the only goal of BPS medicine is to reduce costs. Everything else is superfluous. So no benefit to patients, in fact it makes it worse, but it's cheaper and easier for healthcare services, as long as they don't mind neglecting their...
  13. rvallee

    ‘The Lightning Process’ and chronic fatigue syndrome/myalgic encephalomyelitis, 2022, Vallings

    Well, no. Obviously. What a weird thing to say. The widespread belief that any kind of psychological anything MUST have some sort of benefit is just plain bizarre. Never privilege a lie. Mental healthcare is decades away from having a viable product, is frankly basically at the level where...
  14. rvallee

    Commentary: Graded Exercise Therapy and Cognitive Behaviour Therapy Do Not Improve Employment Outcomes in ME/CFS, 2022, Tuller and Vink

    Great article. The absurdity of subjective and objective outcomes giving different data and successfully making it about how it's the objective outcomes that are wrong is probably the strongest argument to repair the disaster of what EBM has become. Of course the entire psychosomatic ideology...
  15. rvallee

    COMET initiative: Core Outcome Set for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

    Honestly it's hard to miss the pattern that people who work explicitly in research methodology and trials, basically in EBM, seem to be the worst when it comes to research quality. There's this guy, then of course Paul Garner, whose "expertise" is clinical knowledge (imagine that) and Wessely...
  16. rvallee

    Study on Correlation between Acoustic Profiles and Fatigue, 2010, Shin-woong et al.

    Heh, wouldn't even surprise me. Recently there was a study showing that people who live longer have fewer gait/balance issues, and of course the media buzz, which the researchers would probably not object to, was that people should work on their balance to live longer. Ironically, if people did...
  17. rvallee

    Study on Correlation between Acoustic Profiles and Fatigue, 2010, Shin-woong et al.

    Wow. The future of evidence-based medicine is, well, this is it. Enjoy the house you built.
  18. rvallee

    Estimated frequency of somatic symptom disorder in general practice: cross-sectional survey with general practitioners

    Oh, wow, they found an association between Humpty and Dumpty stop the damn presses. This reminds of Vanilla Ice explaining how the intro to Ice, ice Baby is different than Under pressure by Queen.
  19. rvallee

    Management and treatment of long COVID symptoms in general practices: An online-based survey 2022 Schrimpf et al

    Not being treated by specialists does not mean they are being treated by generalists. There are no treatments, I am baffled as to how this could be treated anywhere, but the logic here is just wrong. Seeing someone is not treating someone, the cult of the white lab coat is beyond silly at this...
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