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Then they should say: we don’t have any data because the studies were crap. We need better studies.

How on earth am I supposed to rank 20 symptoms manually?! And the question on the bottom needs a wider scale: How do you feel today on a scale of 1 to 10? (10 = terrific, 1 = totally bedridden) Totally bedridden = lower end of severe. Very severe can be worse. I have no idea what this is...

No PEM?

Everyone wants to know why things happen, even though we can’t. Some make educated guesses, others just make thing up. We’ve always done that. We also like to know how to fix things.

OMF has a table here: https://www.omf.ngo/history-mecfs/

This seems relevant here: https://xkcd.com/882/

We can’t exclude the possibility that the mind can influence some parts of the body. The problem with BPS is that they take it way too far, and they have zero evidence of casuality.

Google gave me this: https://www.s4me.info/threads/genome-wide-association-analysis-identifies-genetic-variations-in-subjects-with-me-cfs-2016-schlauch-et-al.42179/

I didn’t even think of that, but you’re spot on. My sister would probably respond 4 or 5 to every single question, and she’s the least manipulative person I know. She doesn’t have autism, she just likes predictability.

No, mine is free and public (from Norway). His is from the US, so I guess everything goes there.

When I use the bathroom, I have a chair that I can sit on by the sink with my feet up on the toilet lid. So I take a 30 seconds break before I wash my hands, and another before I brush my teeth. If my muscles are bad that day, I might break the brushing into two segments. I rest my arms and...

Participation in research requires informed consent. Informed consent requires a full understanding of both the risks and benefits of the thing you’re going to study. The aim of CBT for ME/CFS is to convince the patient that doing things isn’t harmfull. The patient has to fully believe this...

@oldtimer @Trish you can use the 30 sec method for the tasks you’re currently doing. You don’t have to add more activity. It can be used as a way to reduce the «energy cost» of a given activity, for lack of a better word.

I just pray and hope that she doesn’t become one of the «I know how to recover from ME/CFS» people if she ends up being one of the lucky ones. It can happen to the best.

I have talked to a few mind body practitioners, and they are very adamant that thoughts are physical. That might be because of their lack of reasoning and understanding of the teachings of the dogma, but they argue that the reason that thoughts can influence the body is because of their physical...

I wonder what the researchers’ need for controllability and predictability of their research results would show up as.

I get that feeling any time I read a meta-discussion about psychology. It’s essentially just philosophy described with a different language. Which is really concering, given how much resources and faith society gives the field.

The problem with mind body is that they take the «thoughs are physical»-paradigm way too far. It’s the age old mind over body spiel that has been around as long as humans have existed. They are currently branding it as something new and groundbreaking, mostly based on pseudo-neuropsychology.

The current prime minister in Norway, Jonas Gahr Støre, is from the Labour Party (Arbeiderpartiet). They are a social democratic party at the centre-left. He wrote the foreword to Landmark’s book about LP when he was the health minister. Presumably, they are in the same social circles. Wyller...