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I didn’t know that! Thak you!

archive.is is the strongest paywall-remover. It’s slow, though. Just FYi

Is that more complicated than emailing them and saying «Hey, we want to create a fundraiser for you guys. Can you fix the admin on your side so that the money can go directly to you?» It would be pretty easy money for them.

Yes. The Wikipedia page elaborates on that.

@Jonathan Edwards would it be possible for them to at least write something to the tune of «this is where we’re at with funding, this is how much we need»? I’m sure someone here could set up a crowdfunding of some sorts based on that. I imagine the members can reach a lot of patient communities.

Wikipedia on Continentalc Philosophy. It sounds very familiar. My bolding. Continental philosophers generally reject the view that the natural sciences are the only or most accurate way of understanding natural phenomena. This contrasts with many analytic philosophers who consider their...

I’m sorry that you’ve gotten worse. I have long covid with PEM and I am about to be diagnosed with ME/CFS if the blood work checks out. I pushed (because of gaslighting), and I got way worse. That’s very normal. So if you have PEM, you should really respect it.

I thought it was the opposite? I have a vague memory of a graph that showed an increase in ME/CFS funding, but no change in Lyme or Fibro. This is not that graph, but it shows projects in Germany and Austria. They are probably the best case. https://mecfs-research.org/en/researchupdate/

This is what people need to know: there is such a massive prize here, if only we can have an honest, adult conversation about the full range of things that drive illness, and then take appropriate action to make it better.” Oh, the irony.

I echo @Sasha here. I’ve got donations left this year and I’d love to give directly to a good project. The Norwegian MEA has a research fund that I will donate to if that doesn’t happen. They are the only ones I trust to put the money to good use.

I’m out of the loop here. Can you explain what DecodeME needs the money for? Are they not fully funded?

Blatant lie.

I may be wrong as well, but it seems like ED isn’t defined as «exhaustion after exercise». The dogma is that exercise is good for nearly every mental health and fatigue disorder, so they wanted to check how ED-patients would respond to it.

That’s most of medical and BPS science.

@rvallee we have the same thing in Norway. Pathetic.

I agree, but the LC researchers are trying to solve all adverse effects of Covid-19, which means that they have to solve ME/CFS. I should have been clearer on that.

I have skimmed some parts. It seems like they have done a decent job. It’s still open-label and subjective outcomes, but it doesn’t seem like they go beyond the evidence, and they put weight on the experiences of the patients.

Exclusion criteria for all participants were: (1) ME/CFS, (2) chronic pain disorder, (3) recent post-covid, (4) current suicide risk, (5) current drug use or addiction, (6) current or previous bipolar disorder, (7) current or previous psychosis disorder, (8) untreated hypothyroidism, (9) blood...