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There were some major issues with this study. I have asked ChatGPT to remove the line breaks that came as a result of formatting issues when copying the text, but not alter the text in any other way. So I believe the text is preserved. AI-aided summary: The study initially received ethical...

14 participants in total: «Eleven participants were recruited through a previous study during which they left their contact details for follow-up. Three further participants were recruited via the researcher’s social network to broaden the participant.» A slightly leading question: «The...

Using pseudonyms.

Ogden is one of the professors that resigned in protest of the 2017 special issue that demolished the PACE trial (source: MEA based on a Times article avout emails the got access to): James Coyne, a co-editor on the journal and emeritus professor at the University of Pennsylvania (…)...

Petker’s thesis: https://www.s4me.info/threads/a-thesis-of-clinical-research-and-practice-psychology-and-long-covid-2023-petker.35537/

How to more effectively gaslight your patients. Do they even acknowledge the possibility that they might be the ones that are wrong?

I know they are trying to lump ME/CFS together with anything else with fatigue. We should vehemently oppose the attempted removal of ME/CFS as a distinct concept. But I don’t see why we should be opposed to the removal of burnout because burnout doesn’t make any sense in the first place...

Are those p-values low enough for whole-genome sequencing?

It’s certainly a problem if they try to label ME/CFS and LC as generic fatigue diagnoses, but I don’t see how that’s connected to burnout because burnout is already characterised as a psychological fatigue/stress diagnosis. The BPS-lobby in Norway tries to make everything about stress, like...

I wish the researchers would have left out ‘psycho’.

Would this indicate that the non-imaging tools are not sensitive enough to detect e.g. brainfog unless it’s very, very severe?

Based on a brief skim of the discussion and conclusion, it seems like they are making the case that NICE is firmly in the pocket of big pharma.

So they are adamant that the underlying data has not been affected? A duplicate in the plot could also indicate that the data had an error - how do we know if other analyses have been affected? Surely they would have to rerun their calculations now - and I’m slightly concerned that they don’t...

Welcome, @SineadÓMaolagáin ! I hope you enjoy your stay here - you’re more than welcome to stick around as well :) I believe that these quotes by Jonathan sums things up quite nicely. The issue here is that the participants don’t get enough info about the intervention to actually be ‘informed’...

@mango I’m sorry but I don’t understand the issue here. It might be my ignorance of the topic? I’ll try to adresss some of the things that I suspect you might perceive as an issue, based on my experience from Norway. Apologies if I’m mistaken. Why is it bad that they are going to remove...

This part always gets me. I’m glad her daughter is doing better, but I’m so tired of the gaslighting..

Transcription (in the section below) of a podcast(?) where she talks about Huntington’s disease. Line breaks added. Huntington’s disease (HD) is often described as a combination of Alzheimer’s, Parkinson’s and ALS. It has a diagnosed prevalence of <0.01 %. I’ve been close to 5 people with HD...

Unfortunately, most master theses amount to nothing. I studied economics, and we never learned to judge the quality of a paper. We only learned how to cite them. That might be an issue with economics, but I wouldn’t be surprised if it applies to other fields.

No wonder it has been targeted by the BPS crowd.

I did a 3 hr neuropsychological assessment less than a year after I got sick. None of the results were below any of the thresholds. I tried to tell him that my head doesn’t work like it used to, but the neuropsych was adamant that I could not have had any loss of cognitive function. It did not...