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Fewer than 60 to hit 20,000 been ticking over last few days hopefully people will do fresh social media posts today and it will get over that milestone

Yep exactly as someone with mild end of moderate ME for me any physical activity has to have a practical purpose in support of daily living needs like washing my clothes or cooking, social activity like meeting friends occasionally usually involves some walking. Based on the activity I need to...

I can’t think which review you have in mind :whistle:

Yes. For me at the milder end of moderate I don’t constantly experience sensory overload but it can appear post or during overexertion.

I always feel at my worst on waking.

But seriously does he think that people with post viral illness of all kinds in other jobs aren’t under pressure to get back to work. Especially those that don’t get sick pay.

Why am I shocked at the utter tripe this guy churns out :wtf:

Urea cream is brilliant for cracked heels. Yes I know. I had crack that slightly bled earlier this year as my hard skin had been neglected. The cream works really well and it’s got suitable for diabetics on the label.

@JemPD i suspect he is playing games around ‘false illness beliefs’ again because his lot have used ‘unhelpful’ illness beliefs so whenever people use the word false he feels able to deny it. Splitting hairs of course but it makes it seem to casual observers that they have never claimed...

19,007 I think it is going to take a while to go over 20k at this rate

Thanks to everyone for all your hard work on this.

Premier League assist by @Caroline Struthers :thumbup:

Just had someone with ME who is FB friend sign this and share. There are still people out there to reach

Rate of signing has slowed down now 18,740. Would be great for it to get over 20k, 1250 more. I think it would be good if everyone who is able can send out another social media post. Especially on Facebook there’s no guarantee friends have seen this and it is definitely worth doing follow up...

Other symptoms fluctuate in response to whatever is going wrong due to exertion eg i get various degrees of sore throat from a bit croaky right up to laryngitis where I wasn’t able to talk without pain for 3 weeks. So I guess that could just be the same for food intolerance.

If they believe it it must be true right, the researchers that is of course not the people who actually have the illness.

As an influential group maybe this should be prompting them to get some evaluation done so it’s more than Group throwing stuff at the wall to see what sticks. Even if it is ‘what we’ve been doing for years’. That is a weak argument as we’ve been discussing elsewhere. Maybe I’m coming across...

If they are ok with including amitryptiline etc and gabapentin etc for sleep they haven’t even mentioned melatonin which at least doesn’t have sedative hangover. Is there any thorough evaluation anywhere of the benefits and downsides of these drugs specifically in ME/CFS?

I had a guy that was a handyman to do decorating for the pre sale refurb on my old house. I was able to do moving stuff myself and he then put big furniture in the middle covered with dust sheets and worked round. I found him on a list of trusted traders on the local age U.K. website. Now I’m...

Yes @Peter Trewhitt FB is so rubbish for finding posts that if someone sees a post and thinks I’ll have a look at that later they probably will struggle, even if they do remember. And if they’re someone who likes lots of stuff your post might not even pop up on their list. The only way you can...