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  1. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Well it’s definitely going to be over 16k before 3pm as only 40 more needed will it reach 17k? I think it is possible if there’s another rush hour in the morning
  2. NelliePledge

    What we're not being told about ME - UnHerd (Tom Chivers)

    Thanks @JohnTheJack i did wonder about the audience for unherd when I spotted one of the writers has the surname Furedi
  3. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Good wondering how many more by the end of the week, 17500, maybe even 20,000 is achievable
  4. NelliePledge

    Long Covid – The illness narratives, 2021, Rushforth, Greenhalgh et al

    It suffers a lot with word choices but I’m repeating myself.
  5. NelliePledge

    Long Covid – The illness narratives, 2021, Rushforth, Greenhalgh et al

    Socio-narratology - mmm well all I take from it is a classic example of specialised academic language and terminology seriously hampering communication.
  6. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    i just don’t get why they do that. It’s extremely confusing for non-science people no wonder people get carried away into thinking these throwaway claims have some kind of basis.
  7. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Updated now gone over 13,000
  8. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Yes so far I’ve had three people confirm they have signed. Others may have done too without letting me know…….perhaps I am posting daily updates on Facebook because you can’t rely on your posts actually surfacing on people’s feeds due to that being influenced by FB not a simple case of...
  9. NelliePledge

    Open Online Study into suitability of existing research questionnaires for use in ME/CFS research, Tufts Uni, VanElzakker, 2021

    I did get all the way through i used i dont want to answer this question a lot on the dubious questions. I’m fairly certain one of the sets was Chalder Cosmo quiz
  10. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Top job on Twitter @Trish :thumbup::thumbup::thumbup::thumbup:
  11. NelliePledge

    Medscape: COVID Vaccines Linked to Functional Neurological Disorders

    Yep 3 or 4 years ago on social media group where I used to live I was told by someone who already had ME/CFS diagnosis (can’t remember what they used) that a consultant had told them they had FND and that is the umbrella that CFS, fibro etc come under.
  12. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    About to tip over 12k only 70 more, looks like good support from international ME community :thumbup: Could go past the 2017 one if it keeps going like this.
  13. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    2 people have let me know about Dr P H article. I’m just saying it’s positive he supports publication but he doesn’t seem to understand the scientific basis for treatments to be included in guidelines and that he seems to be waffling on about researching alternative therapies when we need...
  14. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Just a few off 11,000 now. 15,000 to match the 2017 petition doesn’t seem unrealistic Eta it’s tipped over 11k:thumbup:
  15. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Yes GET CBT absolutely doesn’t result in return to previous circumstances. Indeed the fact that return to work didn’t happen for participants on the PACE trial was used for my ill health retirement application in the report by my ME doctor to demonstrate that it was highly unlikely I would ever...
  16. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Even if he just read the MEAssociation purple book he would know a lot more about ME than he appears to currently.
  17. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    I imagine now it’s a fully complete comprehensive NICE review including public consultation and draft guidelines ie Change vs last minute hissy fit from vested interests via arm twisting of Royal College bigwigs ie status quo, it could be a bit awkward in discussions with Private Eye editorial...
  18. NelliePledge

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    I think we were always going to have work cut out
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