Search results

Interesting that in both this article and the NY Mag article they don’t actually interview anyone who believes that LC is actually a biological disease—don’t know why the editors let them do this—this isn’t really journalism—it’s opinion writing based on misinformation.

And now Matt Yglesias has to chime in.

Both NS and her husband Gaffney are leftists.

Conflict of Interest….. A gripping deep deep—seems like he’s got the brain fog.

72 hours is the half life. So it might take 5-6 half lives to metabolize ~98% of it https://en.m.wikipedia.org/wiki/Biological_half-life

From Q & A, sounds like Astellas weren’t seeing (interim) data they liked from the Bocidelpar (ASP0367) trial, so they ended it, but data will still be analyzed. But there were no safety issues.

Michelle Monje is getting involved in “Long Covid” https://med.stanford.edu/monje-lab/people.html

Great question! David Sabatini needs a job—serious comment. He has worked on mTOR/rapamycin. Don’t want to litigate the baggage here https://en.m.wikipedia.org/wiki/David_M._Sabatini Need buy-in from Arc Institute to focus on MECFS— these folks https://arcinstitute.org/team I tried to get...

Someone on PR posted the full half life spreadsheet by days on PR, but I can’t find it anymore.

It keeps working after cessation because it has a very long half life—it takes 2-3 weeks to leave your system.

Also not enrolling any more patients for Muscular Dystrophy trial for the same drug. https://www.parentprojectmd.org/wp-content/uploads/2022/11/PPMD-clean_Astellas-0367-CL-0102-Community-Newsletter-to-DMD-community-003.pdf

Merged thread Making this its own thread because this is big news. And a big disappointment. This was the $8 million dollar trial sponsored by The Japanese company Astellas. Here is a note I got in response to an email I sent to OMF—they in turn forwarded me a short note from Systrom. “From...

Functional medicine is a pseudoscience. https://sciencebasedmedicine.org/functional-medicine-reams-of-useless-tests-in-one-hand-a-huge-invoice-in-the-other/

Ross Douthat...

Seems like Bocidelpar trial may have been canceled—this needs confirmation but bad news if true.

https://www.whitneydafoe.com/mecfs/?post=last-chance-to-triple-donations-for-my-birthday-fundraiser https://www.spotfund.com/story/1a4eeda4-6df9-4b57-a8e4-c53c855bd778?SFID=FindACureForMEcfs2022

Not sure why Michael VE is being so secretive. The grant should be searchable soon on NIH’s website (I think).