The egg shortage is bizarre because even if there is more demand from families, there should now be less demand from the restaurant and catering sector to balance this. I read that there is plenty of flour available as usually supermarkets only account for 2% of UK demand, the problem is the...
Email them and give a time limit for them to refund you fully, stating that if the problem isn't resolved promptly you will have no choice but to report the problem to the Food Standards Agency (include the link to let them know you are serious)...
This is the guidance given to GPs regarding the NHS volunteer group. I notice that GPs are allowed to give the helpline number to patients in the 'shielded group' only, so they can self-refer for help if the want to...
There is a big difference in being 'disabled and unable to work' and 'disabled and able to work' (even if only part-time) because the government has set benefits and social care contributions to 'incentivise work'. This has left many of the most sick and chronically ill disabled claimants in...
Yes, this is why I have to use my PIP to fund my food, supplements, expensive shampoo/soap/cleaning products for my sensitivities, additional heating needs and basic household costs (and my mobility allowance for running my own car) rather than use it for 'care' or paying a cleaner etc. I can't...
This morning I finally got a 'shielding' letter in my own name, NHS number, and address.
Bizarrely, on Tuesday I got a call from the NHS asking for my daughter, and saying she should register on the website as this was 'really important'. The caller started to speak into my answer machine so I...
When I was a single parent with 2 children and moderate-severe M.E., I lived on about £160 a week after rent. This was the amount of income support at the time and included my child benefit. Their father paid no child support. It was not enough to live on - both my daughter's got part time jobs...
I've noticed a lot of homemade cotton masks now being offered on Ebay for about £5-10 including postage. These include the type where you can insert a filter.
it struck me when reading the 'frailty' scale for assessing elderly patients that the 'mild', 'moderate' and 'severe' frailty descriptions seem very similar to the NHS mild, moderate and severe CFS/ME ranges. I think this shows how using these terminologies (mild, moderate, severe) to describe a...
The response you get will depend on your GP. My practice has been very bad in this regard despite me having severe asthma. I've been trying to get them to ensure I get a letter with my own name and address on it, because the national NHS trawl seems to have directed my shielding letter to my...
It's probably no longer usable as medical level PPE due to the date of manufacture. Maybe write the expiry date on it with a permanent pen so that others can see that.
As above @DigitalDrifter , when my daughter phoned Tesco for me she was asked if she 'lived near me' (she doesn't). They are assuming anyone making a phone call on behalf of another is therefore able to help them, your carer needs to make it clear that they are unable to shop for you.
Is there any evidence that 'frailty' is comparable to the functional restrictions that result from M.E.? I would have thought that the warning this scoring system gives that 'special consideration should be given' would apply to PWME:
The figure for overcrowded homes is likely to be much higher in reality (by most people's understanding of the term). My council house would officially only be considered to be overcrowded after the living room has been used by 2 adults as an 'additional bedroom'. That would leave only the...
Tesco now have priority slots available in my area for every day next week. So I'm assuming they are going to add these once a week (possibly more often but only 7 days ahead). I would definitely recommend getting added to their priority list if anyone is still struggling to get online deliveries.
You are advised to be careful, but only the subgroup got letters advising not going to work. My letter (I have severe asthma) went to my daughter, as my 'named carer'. It stated it could be used as evidence to show an employer for getting time off work. I've been trying to get my GP practice to...
They could use their tannoy system to make regular customer announcements to remind both staff and customers of the need to be keeping a minimum of 2 metres (3 steps) between themselves and others. They're quick enough to use these systems to 'encourage' customers to buy more (highlighting...
I'd personally advise anyone with any kind of lung/heart/respiratory problem/diabetes or other significant health problem, to try to shield themselves. One of the Teaching Assistants in my daughter's school is in an induced coma in ICU because of contracting the virus. Most likely the infection...
I've been given 'priority delivery' access by Tesco now. They told my daughter that it would still be difficult to get a slot because so many people have signed up to this service. There are currently no slots available in either the normal or the priority delivery options in my area. I hope...
I put this link in the 'Living with autism and M.E.' thread. Are any of the M.E. charities producing something similar for PWME? I'm not up to this myself, but if not, maybe someone can send them the link and ask them to create a Coronavirus Individual Healthcare Action Plan for PWME...
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