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  1. Simbindi

    UK: PIP appeals - advice, recommendations?

    Useful ruling regarding reading and budgeting: https://www.benefitsandwork.co.uk/news/4338-pip-reading-and-budgeting-points-for-claimants-with-apparently-good-literacy-and-numeracy
  2. Simbindi

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    They are trying to clock up the world beating record of poor and abysmal quality studies conducted involving a named researcher... https://www.merriam-webster.com/dictionary/clock%20up
  3. Simbindi

    Who Are We Without Our Jobs? — The Cut

    A useful chart to compare out of work benefits with a nation's average income you can change some of the settings at the top, for example to indicate your previous earnings): https://stats.oecd.org/Index.aspx?DataSetCode=NRR In the UK this has been reducing year on year.
  4. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    I don't think it will strengthen her position in the longer term, because she is effectively starting to gaslight a whole new group of patients (those with long Covid) many of whom are smart professionals and are able to see right through her behaviour. Her false claim that she was speaking...
  5. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    I think these individuals are still stuck in the past, when patients didn't have access to information and understand professional standards. For example, how naive of CG to think that her BBC appearance wouldn't be available as an on demand recording, from which a transcript of what she...
  6. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    It is right to correct inappropriate behaviour and comments from anyone on social media, regardless of their health or mental difficulties. But how this is done is key. For example, any teacher would know it is essential to model appropriate behaviour to problem students... These professionals...
  7. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    While I agree it is much better when patients behave rationally, politely, take the high moral ground etc., many patients have been harmed by medical professionals (this is particularly true of psychiatry) plus simply don't have the mental capacity and/or emotional education to be able to do...
  8. Simbindi

    Low oxygen SPO2 anyone?

    The article discusses this and other causes that can affect readings or where the reading needs to be taken with caution.
  9. Simbindi

    Low oxygen SPO2 anyone?

    Useful article, explaining in relatively simple language how they work and how to correctly use them: https://www.nursingtimes.net/clinical-archive/assessment-skills/the-correct-use-of-pulse-oximetry-in-measuring-oxygen-status-01-03-2002/
  10. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Either way, she was chair of the RCGP when the training was developed 2010-13, so cannot claim to not be involved in promoting it.
  11. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    She did the videos for it, along with Chew-Graham, so was fully involved in it's development. Someone put the relevant clip up on the Twitter thread.
  12. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    This is a serious problem in our mental health rights/legislation/support, where a certain psychiatrist has been playing a lead role. He hasn't just upset the ME community, but lots of other disability groups...
  13. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    So a lot of people (including professionals) are still unaware that it was CG herself (not her husband) who authored the e-training on CFS/ME for the RCGPs, and that her statements on exercise couldn't possibly be an 'enthusiastic slip of the tongue'.
  14. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Did the BBC just randomly choose these 2 people to invite on to their news programme to convey their 'personal experience'? Surely not, they must have been selected as perceived 'medical experts' with personal experience of having had Covid-19. She made an emphatic statement that there is no...
  15. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    She didn't just demonise our lived experience, she authored an e-learning module for GPs that actively taught her professional colleagues to promote treatment that ME/CFS patients have consistently reported causes significant and sometimes permanent severe harm.
  16. Simbindi

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.networks.nhs.uk/editors-blog/supporting-staff-the-emergence-of-2018long-covid2019 Full article can be read via the link given. It is primarily aimed at NHS workers. Edit: Apparently the Wessely quote is quite old and comes from this article...
  17. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Besides not having long Covid, I think that Boris Johnson wanted to exercise more due to his obesity. In this sense I think he is trying to be more of a 'role model' with regarding to following a healthy lifestyle, of which exercise is just one aspect.
  18. Simbindi

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Well, she's now disqualified herself from writing, or having any involvement with developing, the new/updated training module on ME/CFS for GPs.... This statement also clearly shows how inappropriate the (only recently removed) RCGP one was.
  19. Simbindi

    Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Jason et al

    https://www.gponline.com/lmcs-vote-remove-home-visits-gp-contract/article/1666629 If it does go this way, what hope will severe ME patients have to obtain consistent care, as they will never even have chance to build a relationship with a GP to establish their needs?
  20. Simbindi

    Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Jason et al

    Doing a Google search it seems each CCG and each GP practice is setting its own definition of what a 'housebound' patient is, so effectively patients are being left with a postcode lottery and depend on individual clinicians to 'approve' their needs. See for example...
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