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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    But with both the ineffectiveness and potential harm of such treatment firmly in the public realm , informed consent and the Montgomery v South Lanarkshire legal.precedent may cut a bit more ice ?
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    B12/Folic Acid and D3/K2 Supplementation

    High B12 can suggest low glutathione - which was part of Dr. Richard A. Van Konynenburg's theory for ME/CFS which had a number of very long threads on PR
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    CONservative TReatment of Appendicitis in Children: a randomised controlled feasibility Trial (CONTRACT) , Hall, Crawley et al, 2021

    one of our our gp receptionists is pretty good at thids already- the knack is knowing when she is not on ...
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    Covid-19 vaccines and vaccinations

    Both have had USA trials, so data from these may offer some means of comparison?
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    Are Functional (Psychogenic Nonepileptic) Seizures the Sole Expression of Psychological Processes?, 2021, Sojka, Paredes-Echeverri and Perez

    One of the kids in a private facebook group.i am in, suffers from.these kinds of seizures. Brother has ME , you can draw your own conclusions as to how " consults" go Be aware, this is a growth area
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    United Kingdom: Action for ME (AfME) news

    @MEMarge You have got me there - sience as an all encompassing description I would struggle with. I am not aware of a " scientific advisor" role previously . Previous input has been from various roles - Hazel O' Dowd , Emily Beardall have both contributed - I won't comment on their...
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    Association of core body temp & peripheral blood flow [..] w/pain [..], central sensitization & fibromyalgia.., 2021, Casas-Barragan et al

    My aunt's low temperature has been tweaked a bit by addressing adrenals and thyroid . Her function is also slowly improving. At one point I did an excel spreadsheet to automatically graph the 3 x daily readings to a weekly overview to let her sister monitor things a bit more easily. If you...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Indeed. Going to online for meetings/ info sharing may also have saved time and promoted accessibility and inclusion . ........ If you want things to happen then it's actually been easier to make them happen.
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    United Kingdom: Action for ME (AfME) news

    Sonya has worked hard to turn things around, and is to be applauded. She brings experience to the table as her son has ME. The children's section was AYME , which merged with AfME. Its head was retained as head of children's section and was a major supporter for EC' s research, including...
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    United Kingdom: Action for ME (AfME) news

    For children it may depend on who heads up that section. Was previously one of EC' s fans
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    An epidermal patch for the simultaneous monitoring of haemodynamic and metabolic biomarkers, 2021, Sempionatto et al

    Favourite PhD here for engineering students. My eldest daughter did a bit of work during her masters (3years ago ) calibrating chemical sensors for a diabetic wristband wearable which a PhD student was working on. Biotech is a big sector here.
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    Clare Gerada: influence on UK medical practice and ME/CFS management

    Failing upwards seems to be a growth industry
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thread . Brings back memories
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Reliable source Nigel Speight I think from an early hours Twitter review when getting heat.
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    My daughters feet are a colour that you would expect to find a morgue tag on. After walking to loo and back they go from frozen to chillblains , literally feel as though they are on fire, and colour has changed. It may not look the same as COVID, but there may be a similar underlying mechanism
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    The challenges of chronic pain and fatigue, Eccles and Davies, 2021

    And I thought I was good at creative writing at school......
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Lots of kids are asymptomatic, ( school testing in England will be interesting ) Any parent knows full well how good at communicating disease and infections children are - why should COVID be any different.
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