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I've just seen this link on a round-robin email from my MP, about vaccinations for housebound people. I wonder whether some other CCGs might be doing something similar? Might be worth a visit to the relevant website, for those PwME who can't get out...

:laugh::laugh:

Yes, I returned my first set because I couldn't get them into my ears! That's when I got the Minis instead. Getting them right is a skill, especially as ear canals can differ a lot between people. I got advice similar to that @Invisible Woman quotes above, but actually found that mine go in...

Yes, much the same here. I guess the difference is that I'm not using the local surgery, but one of those centres that has been set up to operate seven days a week on a semi-industrial scale. This one is at former TV studios that I know quite well. I wanted to avoid my GP surgery because it...

I thought not to begin with, they were really uncomfortable. But then some neighbours had people round in their garden, I needed an early night, and so I decided to try them again. This time I obviously got them in at the right angle, because I slept in them all night. I can only sleep on my...

I can't wear headphones either, so I use Flare Audio's Isolate ear plugs. Once they're in, you can't hear anything at all except bone-conducted sound. I saw the original crowdfunder to develop them a few years ago, and was so desperate to have some really effective ear plugs that I chipped in...

I know so little about genetics and stats that I only understand about one word in six! – but it's good to see work coming from a group in the Netherlands.

I tried it with my TENs machine and one of those special ear clips. I find sensory stimuli much more tiring than physical activity, so it ran my energy down quite quickly. It was a bit annoying, as well. And if you accidentally turn the knob the wrong way so the intensity goes up too high, it's...

Can't wait for the conspiracy theories!

Nottinghamshire. The old system of smallish CCGs seems to have changed now, and despite containing several different local authorities, the whole county is under the same one and is using the same app for all the centres.

I expect so – one of my first ever email addresses included 'adminsitrator' because that's how I typed it half the time!

Moved post It appears that, in my part of the UK at least, you can now describe yourself as clinically vulnerable and book a vaccination appointment. Someone I know did this, after being advised by their local authority not to wait for an invitation. Like me, they have ME plus another chronic...

I think there is still scope for it to get better (though of course that doesn't mean it actually will). There appears to be more than one type of Long Covid, e.g., with and without organ damage, with and without persistent viral infection, and these groups still need to be described properly...

It's all very odd; I have the opposite problem, in that I often struggle to get my heart rate up. This is my Fitbit chart for the other day, when I spent most of the afternoon gardening/having a rest/gardening. The 'peak' was when I had to lift and move two 60 litre bags of very wet compost...

Trigger warning: article linked below discusses people close to the end of life. . . . . . . . . . Not directly connected to this study, but here is an article from The Guardian about 'paradoxical lucidity' in people with conditions such as cancer and dementia. I wondered whether it...

That's the whole problem with outsourcing, isn't it. Companies receive financial incentives to do as many assessments as possible, and are pressured to engineer negative outcomes for as many claimants as possible. So if an assessor lies and gets away with it, they're more likely to be promoted...

I agree, there's nothing mysterious about it at all. My dad walked half an hour to work every day for decades, but if it had been on a bus route or he'd had a car, he wouldn't have done. The developed world is engineered to encourage us to pay for the convenience of not having to do activity...

Even the small garage that MoTs my car records all the phone calls. It really, really isn't difficult. I can see why they would argue that it needs to be done by the contractor so there can be no claim that recordings have been edited, but it's as easy to test the recording levels on a mobile...

I must admit I hadn't actually thought about it being used in primary care, although of course that doesn't mean it wasn't the team's original intention. I'd been working on the assumption that it would be used as part of a research toolkit, to ensure that participants in trials are highly...

I don't think that really matters – if it shows that almost everyone with ME gives a signal, and almost no-one without chronic disease does, it's enough to derail for good the BPS approach. In any case, surprisingly few diseases do have highly specific markers. Even well-characterised ones...