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  1. Sasha

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I haven't been following this thread but has this been posted? (Please anyone feel free to post it somewhere better - I feel it needs a response.) https://www.theguardian.com/society/2021/mar/11/long-covid-and-graded-exercise-therapy @Jonathan Edwards
  2. Sasha

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So they're trying to rehab Long Covid people by making them exercise for an hour? This is horrific. o_O
  3. Sasha

    Breathwork

    There's a set of 'Coronavirus recovery breathing exercises' here from John Hopkins about restoring diaphragmatic breathing. I find I'm not able to do diaphragmatic breathing when standing.
  4. Sasha

    Breathwork

    In another thread, @zzz posted this interesting article from The Atlantic: Unlocking the Mysteries of Long COVID As zzz said: And @Helene said: I was also interested by the stuff on breathing. Here it is (broken up for ease of reading): I don't know whether anyone has looked into...
  5. Sasha

    The dangers of sitting?

    I've wondered whether there would be any benefit from a 'passive exercise' machine that PwME (and others who can't move much under their own power) get their limbs moved. I know that biologically it wouldn't involve the same processes, but don't know enough biology to know whether it would help...
  6. Sasha

    The dangers of sitting?

    Two or three years ago I seem to remember a lot of news stories about how sitting (or presumably lying) still for ages at a stretch was an independent risk factor for a shedload of diseases, regardless of whether you exercised even strenuously at some point in the day. The advice was (I think)...
  7. Sasha

    Should I get an air purifier to cope with dust?

    I've read that opening a window is fine when the window is open but soon after you close it, you're back where you started.
  8. Sasha

    Should I get an air purifier to cope with dust?

    Thanks, @Colin, that's all very interesting. I live in a flat a couple of floors up so I'm about 20-30 feet off the ground and set back about 60 feet from the road so I'm less concerned about traffic pollution than about what I'm actually generating inside the flat, in terms of cooking, carpet...
  9. Sasha

    Anyone recommend an ultralightweight hoover?

    Just wanted to provide an update on this. I bought the Vytronix hoover that @Tia suggested and, to my great happiness, was able to easily carry it up the stairs in its box when it arrived. I just tucked the package under my arm! Very light. I put it together easily and used it for ten minutes...
  10. Sasha

    Should I get an air purifier to cope with dust?

    My home is very dusty, partly from my inability to dust and hoover much. I'm wondering what this dust is doing to my lungs, and whether it's behind some of my headaches and rhinitis. Can anyone advise on whether it would be a good idea to get an air purifier? If I got one, I'd go for a HEPA...
  11. Sasha

    UK: Disability benefits (ESA and PIP) - news and updates 2021 - 2022

    About flaming time! The existing system is a disgrace.
  12. Sasha

    Anyone recommend an ultralightweight hoover?

    Thanks, @Tia - I've gone ahead and ordered one! The best hoover will be one I can actually use and this sounds pretty amazing for £30 - HEPA filter and everything. Thanks very much to everyone who has contributed to this thread - much food for thought for all PwME who are thinking about hoovers! :)
  13. Sasha

    Anyone recommend an ultralightweight hoover?

    Wow, that has a lot of highly desirable features! Do you use it on carpet? Do you think it does a good job? Does the suction make it hard to move?
  14. Sasha

    Anyone recommend an ultralightweight hoover?

    Actually if I can find a hoover I can use, a major reason for having a home help would disappear!
  15. Sasha

    Anyone recommend an ultralightweight hoover?

    That's interesting - people seem very pleased with it online though some are clearly using it for easy cleaning between hooverings and it's not designed to get deep dirt out. I'd like to get dust out of the air here (I'm assuming the air here can't be all that great now!). All this may be the...
  16. Sasha

    Anyone recommend an ultralightweight hoover?

    Thank you everyone for bearing with my while I witter through my awkward preferences! It's so difficult to choose a thing like this without being able to try it out in a shop. Normally I'd phone John Lewis and ask for their advice because their staff always really know their stock but they're...
  17. Sasha

    Anyone recommend an ultralightweight hoover?

    I don't think I could even get that up the stairs to my flat, and it's heavier than the one I have already.
  18. Sasha

    Anyone recommend an ultralightweight hoover?

    Do you mean this kind of thing? I need something that will roll on the floor without me having to carry it. I don't have stairs so don't expect to lift it - but was put off this one exactly because the weight is all up in the handle. I thought it would make it seem heavier because I'd had to...
  19. Sasha

    Anyone recommend an ultralightweight hoover?

    I'd thought it was maybe awkward to drag the canister about, but you don't think so? I'm also a bit worried that the handle might be too short. I used a Henry once and it gave me back-ache.
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