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  1. Jonathan Edwards

    World Physiotherapy: Briefing paper 9: Long COVID, physical activity and exercise

    But it still makes no sense to me. Why doesn't World Physio simply put out a statement that they have nothing to offer people with LongCovid? Why don't they say if a physician refers politely send the person back saying there is no evidence based treatment? Why put out a document that despite...
  2. Jonathan Edwards

    World Physiotherapy: Briefing paper 9: Long COVID, physical activity and exercise

    Absolutely, but a physician is trained to do that. When I had acute vertigo and ended up in the stroke clinic the physician who signed me off as stroke free gave me detailed advice on exercise and its value for stroke prevention. If someone with LongCovid has a competent physician assess them...
  3. Jonathan Edwards

    The biology of coronavirus COVID-19 - including research and treatments

    It is worth remembering that several lines of spread at the beginning petered out. We had at least one Chinese case that didn't spread. There was the French chalet where they all had it but in the end it didn't spread. If the virus escaped from the Wuhan lab, as I am pretty sure it did, then it...
  4. Jonathan Edwards

    World Physiotherapy: Briefing paper 9: Long COVID, physical activity and exercise

    I'm sorry but I don't understand the value of this. Why not simply say that there is no reason for a physiotherapist to get involved in LongCovid since we have no evidence to base treatment on? It is full of exactly the person-tailored stuff that therapists are using to dodge the fact that they...
  5. Jonathan Edwards

    The need for a standardized conceptual term to describe invalidation of patient symptoms, 2021, Bontempo

    I tried to make out what this is really about and am still not very sure. The author is a psychology graduate doing a PhD. The emphasis is on respecting the patient's experience. That may sound fair enough but I would not be surprised if like the Bristol crowd the interest in the patient's...
  6. Jonathan Edwards

    BPS attempts at psychologizing Long Covid

    But I thought the discoursers on LongCovid had deliberately avoided any mention of ME/CFS? Seems your damn ed if you do and damned if you don't.
  7. Jonathan Edwards

    The need for a standardized conceptual term to describe invalidation of patient symptoms, 2021, Bontempo

    This piece seems to me totally unhelpful. @Peter Trewhitt makes some important points but I think the situation is more complex still. I may post more later today. But essentially this is like a professor of ignoramology saying that meteorologists have too many words for bad weather and that...
  8. Jonathan Edwards

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Hopefully the hollow ring to these comments will have the opposite effect to that intended. When I was on an ethics committee this sort of whingeing would have gone down like a lead balloon. Let's hope the NEM are in good form.
  9. Jonathan Edwards

    Long Covid epidemiology (prevalence, incidence, recovery rates)

    I was 'unaware' of some of that immunology as an immunologist. I am not that impressed by Cox's grasp of the subject.
  10. Jonathan Edwards

    Insights from ME/CFS May Help Unravel the Pathogenesis of Post-Acute COVID-19 Syndrome - Komaroff, Lipkin 2021

    I don't see how reducing circulation through capillaries would stop pathogens embolising (which is a pretty unusual situation anyway). I would have thought it would be better to open up the capillaries to encourage bacteria to be washed right through and on into the spleen. I am not sure that...
  11. Jonathan Edwards

    Post-COVID-19 Syndrome and the Potential Benefits of Exercise, 2021, Jimeno-Almazán et al

    If the sports medicine people sense that business may dry up because of PWME refusing GET then they need to make sure it doesn't happen for Covid.
  12. Jonathan Edwards

    In progress: Fatigue - Reducing its Effects through individualised support Episodes in Inflammatory Arthritis (FREE-IA): A Feasibility Study.., Dures

    The bit about people with RA only limiting activity when it is intolerable is also garbage. When assessing an RA patient I would get a huge amount of information simply from the way they moved. Someone with RA walks differently, sits down differently, turns their head differently, and when you...
  13. Jonathan Edwards

    In progress: Fatigue - Reducing its Effects through individualised support Episodes in Inflammatory Arthritis (FREE-IA): A Feasibility Study.., Dures

    Seems like drivel. In 1985 occupational therapists were busy teaching RA patients 'joint protection techniques' to reduce the harm done to joints by usage. Most adults with RA keep going as much as they can because they find that unless they move their joints as much as possible during the day...
  14. Jonathan Edwards

    In progress: Fatigue - Reducing its Effects through individualised support Episodes in Inflammatory Arthritis (FREE-IA): A Feasibility Study.., Dures

    Have they? I don't think I ever have. If I am fatigued and try to do something I usually just feel even more fatigued. I may be pleased to have done something essential, like fasten down a dinghy in a force 8 gale in the middle of the night, but I don't recognise the idea of 'overcoming fatigue'...
  15. Jonathan Edwards

    Insights from ME/CFS May Help Unravel the Pathogenesis of Post-Acute COVID-19 Syndrome - Komaroff, Lipkin 2021

    Very much agree. To me the key error here is muddling an explanation of what happens normally with an explanation of what happens in disease. It is similar to the story of 'molecular mimicry'. The story for molecular mimicry is: the immune system has a sophisticated mechanism for leaving self...
  16. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I don't think anyone is likely to want Garner as a spokesperson.He is completely off message for all the relevant vested interest groups except perhaps Phil Parker. BPS people are not going to want people to think you can close down all the liaison psychiatry and rehab centres and employ...
  17. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think the press just like a professor who talks touchyfeely bullshit. He is wonderful material - splurging nonsense about stress.
  18. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Am I right in thinking that all the other pseudoprofessors have gone bit quiet except Garner? Has he not noticed that the Fat Lady has already sung on this story? Will Cochrane be organising a discreet neutralization?
  19. Jonathan Edwards

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Oh but now it is all individualized and nothing to with GET. Need to keep up with the trend!
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