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  1. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Why I think this is so important is that Garner is putting across the real Cochrane values - a sort of evangelical hypocrisy. I have had it from Chalmers and from others indirectly. In a way I think Cochrane is at the root of all the problems for PWME. If Cochrane had been what it purported to...
  2. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I certainly do. I had no difficulty judging people's values when at the NICE committee taking questions - whether Adam, Sally, Peter Barry, Jo Daniels or Chris Burton. Values exude and fluoresce in this area! The lesson I have drawn from my formal engagement so far is that from a political...
  3. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Background and values are different things. Garner and I have similar backgrounds in medical education. From that perspective what he wrote is laughable. If it produced rude comments that would be expected. Garner and I have completely different values. He appears to have the values of someone...
  4. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I am puzzled that you are tone deaf to this one @Esther12. When I read Garner's last blog I thought it was appalling, as evident from my response. It was not what he said had happened. It was the inuendo, or at least apparent inuendo (for which there was no excuse). Basically it was the bit...
  5. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Worth remembering that these are the 0.1% of medics who find they have a need to advertise themselves on twitter through blurting out trendy opinions. The Alain de Botton thread is apt. There is a desperate need to be loved perhaps.
  6. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    It is more the latter - that the theory contradicts itself even before you have any results. So for instance with a theory of consciousness. You propose a theory that it has an explanation that follows the rules of physics. But then you say that the events involved have no specific location in...
  7. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    Yes, and Popper does say this but in a rather oblique comment in his first chapter. From then on he seems to focus on empirical refutation. The main point is that the great majority of scientific effort (at least what I get to see) is wasted on testing internally inconsistent theories. But...
  8. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    I suspect not too long. In truth the fat lady sang a while back. These are the people who play a jolly tune while everyone is leaving the theatre.
  9. Jonathan Edwards

    Trisha Greenhalgh on ME/CFS and Long Covid

    It is the inhumanity and point scoring that sticks in the craw.
  10. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    If I were of the philosopher kind Which thank-the-Lord-I'm-notsir... I would write about the regression of science - how ideas get lost and we go backwards much of the time. The longer I live the more I see wheels from the seventeenth century nearly being reinvented.
  11. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    Sadly I think he fits in rather well. He called himself a philosopher and spent a lot of time trying to say what science is rather than getting on with doing some. His thesis had some merit but the best part of it, hidden away in the first chapter of Conjectures and Refutations, even he seemed...
  12. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    a lot of the time academic rehabilitation research has focused on a model that's very biomedical and we know that obviously rehabilitation is not biomedical it's biopsychosocial although that term also has challenges I can see that these people are trying hard to get things right - but I am not...
  13. Jonathan Edwards

    Psychological therapies. Discussion thread.

    I think much of the time it was this sort of overreaching. BPS philosophy seems to go much wider and further back than Wessely. To be honest I never saw any reason to refer to a psychologist for reducing distress, support with management and adapting. Our psychologists were mostly about 25...
  14. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    Isn't that what they do all the time? Not to be confused with real (natural) philosophers, of course, who tend not to claim to be philosophers, but these days call themselves scientists.
  15. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    And when it comes to the comments on clinical matters such as ME tase people seem to be up to their eyeballs in bullshit. It doesn't even seem to make any sense, as others have pointed out. That Greenhalgh has wanted to tag along with this says it all really.
  16. Jonathan Edwards

    Medical scientists and philosophers worldwide appeal to EBM to expand the notion of ‘evidence’, BMJ Evidence Based Medicine 2020

    Philosophers spend eons arguing about what cause is but only because they insist on using language that nobody with common sense would want to use in the context. Causation is a very subtle and complicated business but as applied to science it is usually reasonably easy to see what is meant by a...
  17. Jonathan Edwards

    Off label use of Aripiprazole shows promise as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Crosby et al. 2021

    That seems to confuse two different issues. Whether or not practitioners preach CBT has nothing to do with whether or not they have time to do trials. I know practitioners who recommend CBT but also make use of dog therapies. The issue of having time to do proper trials before handing out...
  18. Jonathan Edwards

    Off label use of Aripiprazole shows promise as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Crosby et al. 2021

    Various members are suggesting that patients are able to make 'adult' rational decisions about this drug. But as far as I can see even the authors of the study fell short on that. How on earth are patients going to know the odds? How is someone with ME going to know the right choice here if none...
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