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  1. Dolphin

    An Appeal for Help with Llewellyn King's ME/CFS Alert videos

    Here is a message I just received: --- An Appeal for Help with Llewellyn King's ME/CFS Alert videos: --- Dear Friends, I believe that there is a permanent social crisis: people who are sick but hidden in plain sight. People who bear perpetual disease with fortitude while living their lives on a...
  2. Dolphin

    The economic burden of CFS/ME: an initial summary of the existing evidence and recommendations for further research (Brenna & Gitto, 2017)

    I have no idea whether "person-centred healthcare" is interesting or not or what it might mean in practice. They don't give any other information on it I think.
  3. Dolphin

    The economic burden of CFS/ME: an initial summary of the existing evidence and recommendations for further research (Brenna & Gitto, 2017)

    Although the authors themselves may not have strong views, this mentions a lot of nonpharmacological interventions studies (e.g. on CBT) and claims they showed benefit in terms of QALYs. These are self-report measures and there is no mention that there could be problems with them.
  4. Dolphin

    The economic burden of CFS/ME: an initial summary of the existing evidence and recommendations for further research (Brenna & Gitto, 2017)

    Free full text at: https://www.researchgate.net/publication/320111650_The_economic_burden_of_chronic_fatigue_myalgic
  5. Dolphin

    Fatigue is associated with altered monitoring and preparation of physical effort in patients with chronic fatigue syndrome (2018) van der Meer et al

    There was this study from Australia:
  6. Dolphin

    The Chronic Fatigue Service run by East London NHS Foundation Trust (ELFT) is closing

    This service: https://www.elft.nhs.uk/service/308/Chronic-Fatigue-Service
  7. Dolphin

    The Chronic Fatigue Service run by East London NHS Foundation Trust (ELFT) is closing

    I get the impression that services connected with CBT and GET therapies can sometimes be worse than nothing. Here is what the Barts service said on the draft NICE guidelines last time. This service replaced the Barts service: Barts and services linked to it such as an in Essex and Sussex...
  8. Dolphin

    Physical activity at age 11 years and chronic disabling fatigue at ages 13 and 16 years in a UK birth cohort, 2018, Crawley et al

    Yes I'm sure it is something to do with that. However I'm trying to work out exactly what. It could be that boys are an average 100cpm more active though I'm not sure how this is used or adjusted for in the paper.
  9. Dolphin

    Physical activity at age 11 years and chronic disabling fatigue at ages 13 and 16 years in a UK birth cohort, 2018, Crawley et al

  10. Dolphin

    Physical activity at age 11 years and chronic disabling fatigue at ages 13 and 16 years in a UK birth cohort, 2018, Crawley et al

  11. Dolphin

    Physical activity at age 11 years and chronic disabling fatigue at ages 13 and 16 years in a UK birth cohort, 2018, Crawley et al

  12. Dolphin

    Physical activity at age 11 years and chronic disabling fatigue at ages 13 and 16 years in a UK birth cohort, 2018, Crawley et al

    They only excluded people whose fatigue had lasted 5 years or more. There was a 2nd category they included: So people's fatigue at age 13 could have started before the age of 11 in which case it would not be surprising they might have been doing low activity levels. When they just restricted...
  13. Dolphin

    Physical activity at age 11 years and chronic disabling fatigue at ages 13 and 16 years in a UK birth cohort, 2018, Crawley et al

    Not important, but I don't understand the underlined bit.
  14. Dolphin

    Physical activity at age 11 years and chronic disabling fatigue at ages 13 and 16 years in a UK birth cohort, 2018, Crawley et al

    So as the authors say the definition at 16 years is more rigourous as it also requires the patients to report significant fatigue along with the parents' report.
  15. Dolphin

    Elevated brain natriuretic peptide levels in chronic fatigue syndrome associate with cardiac dysfunction: a case control study, 2018, Newton et al

    https://tinyurl.com/y7ywdjd2 i.e. http://www.meassociation.org.uk/2018/02/mea-summary-review-elevated-bnp-levels-in-me-cfs-associate-with-cardiac-dysfunction-14-february-2018/ MEA Summary Review: Elevated BNP levels in ME/CFS associate with cardiac dysfunction | 14 February 2018...
  16. Dolphin

    Sex differences in amino acids lost via sweating could lead to differential susceptibilities to disturbances in nitrogen balance and collagen turnover

    Free full text: https://link.springer.com/article/10.1007%2Fs00726-017-2431-4 Amino Acids. 2017 Aug;49(8):1337-1345. doi: 10.1007/s00726-017-2431-4. Epub 2017 May 4. Sex differences in amino acids lost via sweating could lead to differential susceptibilities to disturbances in nitrogen...
  17. Dolphin

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    https://www.the-scientist.com/?articles.view/articleNo/51701/title/Cuts-to-Prevention-and-Public-Health-Fund-Puts-CDC-Programs-at-Risk From what I gather, the Prevention and Public Health Fund is the exclusive source of funding for the $5.4 million CDC ME/CFS program, so I wonder could it be...
  18. Dolphin

    Recruiting study: (Stony Brook University, USA) Exercise-related Post-exertional Malaise (CFS/ME)

    via https://cfsme-registry.info Brief Summary: This pilot study is intended to identify sex differences in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) during recovery from brief but high effort exercise tests. It is expected that women with ME/CFS as compared to males with...
  19. Dolphin

    RCT of online continuing education for health professionals to improve the management of chronic fatigue syndrome: protocol (2017) Lloyd, Barry

    Keith Geraghty was one of the reviewers. The review history is 39 pages, though there is probably some duplication where the reviewers make the points and then the authors reiterate to reviewer points and then respond. http://bmjopen.bmj.com/content/bmjopen/7/5/e014133.reviewer-comments.pdf
  20. Dolphin

    Positive Health Online: ME/CFS, NLP and the Lightning Process in the Looking Glass

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