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Absolutely. Unfortunately, every so often you'll see some local patient group or other lobbying for more/better services and treatment. In the current situation that means more of the same and, worse still, the powers that be and the likes of Crawley et al can then claim that patients asked...

As is usually the way with this BS. Promise a solution based on enabling a person to help themselves while carefully not committing to details. Then when the person is not or does not feel enabled, it's all their own fault. Snake oil salesman technique 101.

Luckily, it didn't take too long to reverse it. A week or two of daily headaches and then they tapered off. Long enough when you're still suffering though!

:) @spinoza577 Nothing confuses quite so well as the English language! Even for native English language speakers. Feelings can mean - Emotions - I feel - sad, angry, scared, happy, excited etc - Physical sensations - to feel - sick, pain, tired, unwell, indigestion, a headache coming on...

Well...there's no cure, possibility to blame the patient - abnormal beliefs, ineffective handwashing - maybe abnormal beliefs about the effects of handwashing :jawdrop:. Most recover in time, we don't really know why some others don't... Whatever the problem, Simon can help.......soak up any...

I met an adult who was prescribed speed. It didn't end very well.

Speaking for myself - I don't recognise what you are describing here. I am a self confessed irascible individual. Quick to anger, quick to laugh and don't suffer fools gladly. I've always have been like that. My whole family are. If anything since developing ME, I have become a little more...

This argument always amuses me. Confession - until I got ME (or yuppie flu as the papers informed me) I didn't really believe in it. I wasn't a b***** about it, I didn't really think about it at all. I just knew what the papers printed. Turns out I don't have to believe in it to have my life...

I struggled for years with earplugs. I have quite a small ear opening/tube. There is a noun for it that escapes me today! Anyway, I find Moldex Spark Plugs very good (35snr). I think you can rinse them but I find I don't really need to. I guess it depends on how mucky your ears get. I wear...

Huh? Had a quick scan - The say they established that 51% of respondents don't need to be absent from.work because of "chronic fatigue" and 23% can't afford to be & their productivity is affected. So 75% are still capable of getting themselves into work and seem capable enough at work to be...

I don't believe emotions are a part of my ME either. I can't speak for anyone else but my own take on this is- 1 - people early on in the condition are falling apart. They are under more stress than most people can possibly imagine - their health, careers, social life, finances and possibly...

Some individuals like to repurpose clear descriptions of distinct phenomena and use it for their own ends. I wonder if this is what happened here rather than it being ill defined in the first place? Perhaps if the science/medical establishment clamped down on such deliberate attempts to confuse...

The b*****ds just don't want to get better!!!

I dunno..... I've been hearing this kind of things for 20 odd years now. There may be something in it but.... I had major issues with IBS since as far back as I can remember. I developed an autoimmune issue very young - months old. I also had some relatively mild allergies. It is possible...

Corona virus and post- Just caught a part of an interview with an expert on the BBC. Apparently virii (?) don't survive very long on absorbent material like paper and envelopes and probably die off within a few hours at most. So unless it has been contaminated very shortly before you receive...

I've not read the whole thing - For the newly ill, you're still very much in a learning curve (adults at least). So things may temporarily seem to be improving but may not be sustainable. So you might find certain prioritization perfectly acceptable in the short term but as that rolls into...

Lovely. Then again, if he's a contractor, he might only earn money for the hours he actually works or even by the journey. So, if he has a family to feed and is already struggling he may have no choice. This self isolation business is all very well, but poorer workers on zero hour contracts...

I think they know the virus will peak and are hoping they can ride it out until the winter season is over. A&Es can barely cope with the average influx of winter related ailments anyway, so if the peak happens once that's over maybe the NHS won't implode. Also if the peak coincides with...

Interesting that these sort of tactics are being appropriated from the insurance industry. As anyone who has had to claim on car insurance will know, they always try to persuade you to go 50-50 with the other party involved to save themselves the cost of admin. Your resulting higher premiums...

Firstly, I don't want to derail the thread about who has what and what is ME, what some might consider a comorbidity, or just other diagnoses that pwME might have. There are other threads with those conversations. So. PEM - my own personal opinion. Many of us a few years into the illness...