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Off to a very poor start. However I hope we see more attempts to objectify this, but the problem remains that there is nothing to calibrate this with. There needs to be a "ground truth" to validate answers, otherwise it's basically calibrating guesstimates with guesstimates. It's not...

Chasing the "3rd leading neurologic disorder" quote. Oh, that was last year, actually. And still complete inaction. And it's based on analysis from the General Accounting Office, which is the main accounting agency of the US government. So not even from a health agency. Wow. We are really...

The US department of Health and human services has quietly told a truth. Very quietly. I guess this counts as public health now. Or at least provides legal cover so they can say that they absolutely did very quietly say it once or twice. It's getting easy to see how some pandemics in the past...

The issue is more over the fact that the charlatans are trying to depict the change as complete and radical, when it was in fact relatively minor all things considered. They never called it PEM, but they have always used "boom and bust" and it was about the same thing, just their interpretation...

Another "new" copy-paste of the same old. Always the same recycled crap. And they get paid for this. Again and again. I was a programmer for over a decade and did not copy-paste as much of my work as these people did. In their own literature it's well-documented that patients don't buy their...

Oh I mostly thought it was funny and illustrative of the kind of people who believe in the kind of BS that captured our illness. If I ever noticed that I shared beliefs and opinions with someone like this, I would definitely question strongly them. "Mind-body" and "it's just anxiety" opinions...

CoQ10 has come up a lot on LC forums. Not a lot of convincing evidence from there given the wild fluctuations and how unpredictable remissions and recovery are. Doesn't seem like a good use of funds, frankly. We need game-changers, not torturing statistical significance for the lowest possible...

Yup. It's mostly an issue of garbage in garbage out. And so far even in the context of LC making this far more known, it's still mostly garbage in. It's frankly looking to me like it's simply not possible to study subjective experience without heavy involvement from the subjects themselves. Not...

There's also the FINE trial that is getting a bit forgotten in this, especially as it has formed the basis for NHS training despite showing null results. "You're fine, there's nothing wrong with you, this is the moment where you push", etc.

Doesn't name or link to the study. New Northwestern study reveals alarming impact of long Covid on patients https://www.fox32chicago.com/news/new-northwestern-study-impact-long-covid-patients Researchers at Northwestern Medicine found that among those tested, 85% reported decreased quality of...

Unless this is written poorly, this is not a valid method of assessment. If it means any acceleration, rather than total distance covered, or average total distance covered per 5-minute interval. It wouldn't tell the difference between walking and just shaking your foot while sitting reclined...

If someone can make any sense of this word salad I'd be really impressed, but to me it's a very good representation of the kind of people who believe in this kind of BS. The kind of delusional rant you'd expect screamed on a street corner, or a psychiatry conference, I guess. At this point, I...

Ironically, since MS is taken seriously and has medical advisers by the truckload, they are probably more likely to OK this from the top without much input from the patients, with most of them assuming that the medical professionals helping them would never OK pseudoscience and so it must be...

Mitochondrial impairment but not peripheral inflammation predicts greater Gulf War illness severity https://www.nature.com/articles/s41598-023-35896-w Published: 12 July 2023 Gulf War illness (GWI) is an important exemplar of environmentally-triggered chronic multisymptom illness, and a...

Greenhalgh? Expert? At what? She wrote 3 things on LC and they weren't even good, has a long history of dismissing chronic illness. Did she read the paper? Or just glosses over the ME references that she has been dismissed with hostility for years with her pals? I guess you can say that she...

Oh it never died. I recently saw an article about a new class of SSRIs. They're still very much in on the chemical imbalance, still desperately holding on to the serotonin thing. Depending on who asks, when you ask, who is in the room, and so on.

Despite the continued indifference of healthcare systems, public officials and medical institutions, there has been a recent shift in how Long Covid is covered in the media. It pretty much went from "not even a thing" to "this is a giant problem" over the last few weeks as studies are confirming...

I don't expect much out of this, but I have no issues with the lack of ethical approval. Most of what happened in the early days of the AIDS crisis had no ethical approval, was even explicitly illegal. We have seen what gets ethical approval, and little of it is actually ethical. It's merely a...

Completely absurd. This is pure waste with zero possible benefit.

Sealioning. Plenty has been written already. This is not sincere. Or at least it doesn't seem to be at all.