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  1. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Given his recent Cochrane review, likely trying to badmouth the community. Probably in the Norwegian press, or something like that. Do a bit like what Afflicted did to the participants. That was truly revolting stuff.
  2. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    And others, apparently. I guess word of mouth got around. I remember Vogt tried this a few times on Reddit. It did not go well. It's truly amazing how these people can be so delusional about how they are perceived. They'll still go around thinking that the right patients like their stuff. You...
  3. rvallee

    Preprint The Human Microglia Atlas HuMicA Unravels Changes in Homeostatic and Disease-Associated Microglia Subsets across Neurodegenerative Conditions, 2023

    I think we got that. Did we get that? I'm pretty sure at least Polybio has that. But yeah we need more brains. Which sounds both creepy and interesting.
  4. rvallee

    Book: Treatment of Neurasthenia, 1914, Hartenberg

    Wait are you describing then or now? Because...
  5. rvallee

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    There was an article about this in the early days saying he'd gone back when Long Covid started pushing funding to those clinics. Which I guess I kind of missed. Of course they follow the money. Their research is all finely crafted to produce more research. So I guess we should eventually see...
  6. rvallee

    Functional disorders are probably associated with psychosocial stress because they're unexplained

    And it must be said that although in recent decades this has largely fallen out of fashion with smart people, it doesn't take going too many decades further back to find ideas like this extremely fashionable throughout the whole population, including in very smart people, even commonly applied...
  7. rvallee

    Review DNA methylation signatures of functional somatic syndromes: Systematic review, 2023, Fischer et al

    This is not a fact. At all. It makes a causative claim. There is no evidence of causation, only correlation, which is consistent with being a consequence of. This is not serious, it's opinion. Although yeah we are currently in a phase where they begin with the assumption that there is no...
  8. rvallee

    Preprint The predictive role of pain catastrophising following genicular arterial embolisation for the treatment of mild and moderate knee OA, 2023, Harrison+

    So, people who have more pain report more pain, and likely express more pain? What this is definitely worth a dozen Nobel prizes. The chocolate kind, but still.
  9. rvallee

    Long Covid in the media and social media 2023

    Let's see if it can be followed through, maybe a bit of community pressure.
  10. rvallee

    Preprint Prevalence of long-term symptoms varies by using different post-COVID-19 definitions in positively & negatively tested adults:PRIME study, 2023, Pagen

    There is likely a natural variation on top of the poverty of most studies. There is no reason why Long Covid should be evenly distributed across the population. There are many factors having to do with local variants, how much they spread and many other factors that naturally lead to variations...
  11. rvallee

    A qualitative longitudinal study of a health psychological group intervention for patients with ME/CFS, 2023, Keurulainen et al

    Right. That's very problematic. It meets some needs. Mostly minor needs. It doesn't look all bad, but it gives a very false impression of how useful this is, that this is a replacement for medical care, when it's alternative health care. And really, it's probably no more useful than a GP...
  12. rvallee

    Nature Microbiology Editorial: Connecting the dots from viral infection to disease, 2023

    Uh, no, I don't think we can say that anymore. Which makes this: especially damning. Having just abandoned everything having to do with COVID is just incredible mass failure. It's completely unprecedent for an expert profession to just give up like this, about something they know is important...
  13. rvallee

    Cochrane Exercise Review Withdrawn - Individual Patient Data

    After having their entire body or research invalidated several times on this ground alone, this is incredibly foolish and stubborn to the point of being fanatical. Looks to me like a shift away from anything about ME/CFS and towards even more generic illness definitions based around single...
  14. rvallee

    USA: The RECOVER Initiative - Long Covid research

    Once again showing the disconnect. Someone at the NIH is quoted saying something like "this is what the patients have been demanding all along", which I guess simply means that there are trials, while the community has had a very unimpressed response that is basically, "yeah, we definitely have...
  15. rvallee

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Speaking of this, I received no email confirmation that mine was under consideration. I think there should be one?
  16. rvallee

    Symptom exaggeration and symptom validity testing in persons with medically unexplained neurologic presentations, 2015, Lockhart & Satya-Murti.

    The increasing need to reduce costs, even at the expense of actual lives. The biopsychosocial model has made this front and center. There are so many diseases and conditions that medicine knew nothing about and now treats. People live longer and that adds significant burden. But healthcare...
  17. rvallee

    Evaluation of a Webinar to Increase Health Professionals’ Knowledge about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS),2023

    However frustrating it is to those of us who are beyond those improvements, there is still quite a lot that GPs can do to help. Even if it's just understanding what it is and giving the right advice. It can make a world of difference, I know it would have for me. Not for everyone, and the fear...
  18. rvallee

    Symptom exaggeration and symptom validity testing in persons with medically unexplained neurologic presentations, 2015, Lockhart & Satya-Murti.

    Love this probably unwittingly dishonest list. They are very much identical, however much they could pretend that the "or" does not imply it. It doesn't imply it, it says it. The dishonesty is especially infuriating, where they say it plainly in most contexts, and reserve the lies where they...
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