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I read 'they retained the rights' as referring to the authors. It's ambiguous.

I haven't looked at the protocol yet, but the letters are outstandingly good. Huge thanks to Mary Dimmock and Todd Davenport for sticking with this.

Yes, and not tracking what exercise the participants actually do, and after only 2 months allowing switching from control exercise to treatment exercise, so no long term followup is possible. Apart from the fact that those with PEM are at risk of harm, the whole thing is a nonsense.

Thank you @DMissa. That's a very helpful explanation for someone like me with very little knowledge.

RSV vaccination is now offered in the UK for those aged 75 or over. I had the vaccination a few weeks ago. No side effects at all, not even a sore arm.

I did realise that, just joining in with your analogy, which is a good one.

Surely would only be a very temporary effect. And breathe a bit faster/more deeply? I can make my finger pulse oximeter go from 96% to 98% with a few deep breaths, though don't overdo it, as hyperventilating can make you faint. Alse ensure you're not anaemic.

On harms, see our letter to Cochrane which spells out the evidence with references: https://www.s4me.info/threads/s4me-2023-open-letter-complaints-petition-updates-regarding-cochrane-and-the-cfs-exercise-therapy-review.34973/page-2#post-521800

I'd say there are two ways to drive a car, as fast as you can, pushing yourself above what is safe for the road, weather and traffic conditions, driver's skill and speed limit, and at what is safe for the road, weather conditions and traffic conditions, within the speed limit, and within the...

I guess that depends whether they are looking for immediate effects or gradual or long term effects. If only immediate effects, such as testing a pain killer, then rotating them makes sense. If the treatment is aimed at, for example, long term elimination of PEM that only be judged over several...

Ah yes, I remember reading that blog of yours and thinking what pompous, mansplainy, silly and insulting letters from Riley. I won't say more about how it makes him look, as it would break forum rules.

I would assume the therapists main allegiance would be to their professional body, eg the Royal College of Nursing or the equivalent for physios, OT's and psych therapists. That would be required for things like insurance, act as their union etc. I think BACME is just a self important club for...

Reminds me why I stopped following discussions on FB, including the MEA.

Dated 14th February. Also posted and discussed here: https://www.s4me.info/threads/2025-the-2019-24-cochrane-larun-review-exercise-therapy-for-cfs-including-iag-campaign-petition-comments-and-articles.42305/page-35#post-590812

Ha, yes, I just saw that. go to this thread to discusss Riley's resignation: https://www.s4me.info/threads/united-kingdom-me-association-governance-issues.42093/page-66#post-591834

Does anyone have any information about what is happening with this project?

If you read part 1 of our complaint, it seems clear to me that Cochrane have broken their own rules about when to create a new citation. Cochrane's response: "Cochrane decided to publish the editorial note in question with a new citation to ensure discoverability of our decisions regarding...

Thanks.

If the review doesn't recommend for or against exercise they should be willing to attach an editorial note saying the review should not be used as evidence for clinical care. Edited.

I find the above justification of the new citation totally ridiculous. And it's another anonymous letter. Sigh. So now another appeal to be written and submitted. Don't know why we bother really. They are treating people with ME/CFS with contempt.