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From the other thread: I see, thank you. I find the minutes of Forward-ME meetings are often too brief to provide adequate context.

"Gaslighting" is the new "cupcake".

Thank you for providing evidence that the term "gaslighting" as a concept was being used in academic papers as early as 1977. In 2006, Turner-Stokes may or may not have been familiar with the concept and from where the term originated. In 2006, the term, "The GAS-Light model" was applied to a...

I'd like to make the following point but this in no way seeks to mitigate: If you look at the references at the end of the GAS-Light document they are from 2006. References at the end of this KCL page which also includes links to a number of other documents and papers on "GAS - Goal Attainment...

Confirmation received, today, from NICE's Media Relations Manager that no press releases had been sent out prior to the announcement on August 17th...

Excellent letter. Well done and thanks to everyone who worked on putting this together.

When Westcare was absorbed into AfME, I don't recall any function of Westcare being retained. But Westcare's former lead, Dr Richard Sykes, was granted several years of funding via his brother's charitable trust to enable him to continue working on his "CISSD Project" (2003 to 2007) (aka the...

It was in the beginning. But there were clashes and Invest in ME withdrew. I note that MEAction were forced out, following the joint position statement, but are now restored.

I suspect, as with AfME's absorbing of Westcare and more recently, AYME, that the ME Trust is struggling financially.

I don't consider Forward-ME would have any business encouraging mergers or any other changes to the structure of other organisations if that were its objective. Forward-ME is not even constituted, itself, as any form of registered charitable org or community interest company. If the incoming...

Following my contacting Forward-ME and a follow-up email to Steering Group member, Sonya Chowdury, an edit has been made to the text in the FAQ. The text now reads: https://forward-me.co.uk/faqs/ What’s the origin of the disease in the UK? (...) The WHO classifies myalgic encephalomyelitis...

I don't know, Adam. The ME Trust is a member of Forward-ME. But the proposed merger/absorption of ME Trust with AfME is surely the business of ME Trust - not Forward-ME. In the minutes of the 16 March 2021 meeting, incoming Chair, Andrew Morris said: Point 7 is one of 12 points under...

Moved post No, it is not a registered charity, registered community interest company, or any other form of registered organisation. I know the name "Peter White" from Twitter but I don't know in what capacity he works as a "volunteer" for Forward-ME. I'm not aware of Forward-ME having...

ME Association on Facebook: https://www.facebook.com/meassociation =AZVKXdg0qpaXEmKNGQYW23zcwU74LYBiybWmqMm7mb3a5sIavQMaBnE0Wq4-ZRFnQsbIvVqgwbNiXmcEi338TEiFw_gQrr_DnmunsfpdrPZDDIuxIC7Mvn6YjNISkn27H0ii1sYYldDut0IzLWt3TCFf&__tn__=R]-R']ME Association The headline in the paper version has now...

To clarify, I'm not suggesting that the 2007 press release (for which the PDF was created on 21/08/2007) would have gone out the day before the guideline publication date. The website version of the press release may have been edited on 21/08/2007 to remove the embargo notice; the version for...

For the launch of the 2007 CG53 Guideline, NICE posted a copy of the four page press release on its website on 22 August. The guideline was published on 22 August. (The PDF of the press release had been created on 21/08/2007.) On Page 4 of the press release, in the "Notes to Editors", it says...

This morning I emailed NICE to ask if they would clarify whether a press release had already been sent out, prior to the announcement on 17th August that release of the final guideline was now "paused".

Thank you, Simbindi.

It will be a few years before NHS England is ready to migrate from ICD-10 to ICD-11, but when it does implement ICD-11, there will be no Neurasthenia or Somatoform disorders as these have been subsumed and replaced by the new 6C20 Bodily distress disorder category, for which exclusions for all...