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It's almost like for all intents and purposes that, in the context of illness, depression and anxiety can simply be substituted for illness. Especially as they pretty much literally ask about common symptoms of illness, as a result of having labeled illness as depression or anxiety for decades...

This is the kind of stuff that makes this entire thing a clown show. Trauma, so generic and vague they call them life experiences, is the foundation of conversion disorder, has been for decades. And they pretend, literally over a century later, to ponder this as a subtype. It's obsessive...

To anyone in the know, Stackoverflow in even greater shambles. It's basically THE website to ask programming questions. And GPT does it far better. Although it's likely SO was a source of a lot of the data. But the explanations GPT offers are sometimes mind-blowing, it can even understand a...

Uh, no, it is not. Fatigue means its own thing. Muscle weakness is its own thing. Sleepiness is also its own thing. PEM is definitely its own thing. This is FUBAR, a "scientific" paper where basic words are essentially meaningless. We can't have a serious discussion when basic facts are in...

This study is making the rounds in denying circles, including the hardcore conspiracists. As far as I can tell, they sampled people with acute illness of any kind as long as it looked enough like COVID to be suspected, separated between COVID+ and COVID-, then did a superficial assessment. It...

Full title: Association of Initial SARS-CoV-2 Test Positivity With Patient-Reported Well-being 3 Months After a Symptomatic Illness Open access: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2799116 Question How do patient-reported physical, mental, and social well-being compare...

It's pretty ridiculous to spend this much money to get this little data that really tell us nothing. This kind of associative data could go in any direction or be explained by a number of factors. No wonder research is so expensive when it's basically 90% waste as a baseline. The entire process...

Self-management of chronic illness is not empowerment. It's pretty much the exact opposite, it serves to trivialize and as an excuse to do nothing. Empowerment means power. We have no power. In the context of healthcare, we have negative power, we are constantly bullied and talked over, we...

Hehe. Not AI-generated, though, this is an old botched taxidermy. Many exotic animals brought by explorers did not really have much of a before picture, so many early specimens looked terrible. Because they were missing data, was mostly the point I tried to make. Without a plan for what it...

This says a lot about the limits of empirical evidence, how it's possible for thousands of professionals to be unable to see what's right in front of them, because an ideological model tells them otherwise. They simply cannot do this, one way or another they will follow a theory, no matter how...

Yup. All of item 1, and one of item 2, where PEM is. However one option in item 1 kind of describes PEM, so this is very confused: Although I'm not even sure what I'm reading here: Wut?

Damn the one about patient involvement is also really great. What's even more great is that this is mostly based on what is said, not what is actually done. So you have people like Greenhalgh who can write about patient engagement in research, but explicitly reject us. The exemptions and...

LMAO, this is seriously smarter and closer to reality than everything BPS I have ever read combined. It even understands the underlying arguments better since it doesn't do arbitrary exemptions. Huge potential here, worth exploring. Although I don't see this as angry, it's really spot on, actually.

For a change of pace, photos instead of the usual text, the main LC subreddit is having a "faces of LC" moment since yesterday and continuing today. Lots of before and after photos. It's easy to lose sight that there are millions of real people behind when we never really see them, see us. Link...

This is especially relevant considering how massive the strength imbalance between sexes is. It's something like the average male is stronger than 99% of females, this completely skews any cohort that isn't completely matched far above any statistical significance, let alone a clinical one. In...

I don't think there is a reason to think any of this is "sub-optimal", mitochondria may in fact be doing what they need to be doing, because of an upstream cause, as all illness is. No reason to think the terrible exhaustion from acute illness is fundamentally different than when it is chronic...

A smart person on twitter made the suggestion that this could be used by pwME to write emails and documentation when working through an official process, say like comments about guidelines. Some examples of how this tool can be used to take a text that is very informal and make it sound...

LMAO this better be a joke paper or just close the whole thing down and restart academia from scratch.

This person obviously cannot lead a medical research institution. Deeply, deeply unserious. A small number of positive anecdotes: must be considered true and whole. A very large number of negative anecdotes: meh There it is, complete cherry-picking in a nutshell. I think this is why all...

Lots of corruption at Cochrane it seems. We need answers for this. This is obviously false, this did not stop after a "solid factual review", in fact the update is allegedly happening. So they seem to actually believe their own lies. But it also raises the question of whether it is actually...