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There is truly a market for desperate people. The claims of recovery can be marketed. It can be a therapy, a device that is sold or rented, it can be a diet, supplements. It could also be a diagnostic test (live blood analysis, anyone? hair testing?). It’s been going on for decades.

Towards a Treatment for Gulf War Illness: A Consensus Docking Approach Rajeev Jaundoo, BSc, Jonathan Bohmann, PhD, Gloria E Gutierrez, PhD, Nancy Klimas, MD, Gordon Broderick, PhD, Travis J A Craddock, PhD Full text here (note: When i post papers pertaining to GWI I always wonder whether i...

if this is a pinched nerve, you may find relief with a good massage, or simply trying to stretch your cervical spine by placing a tennis ball between your neck and the floor, or your neck and the wall and roll gently. Trying some stretching could also be helpful. Stretch your neck gently and...

Numbness or tingling can happen if you have a nerve pinch, and depending where the pinch is, it can affect only certain fingers- look up ‘dermatome chart’ Fingers and toes tingling would be more related to small fibre neuropathy where the most small nerves are affected. And of course, most of...

I think also that N=1 or 2 or 3 will be a problem as well. Did they represent the disease? how long were they sick for? Is aging involved in the pathology?

Maybe you should return to your doctor and find out whether you indeed have MG, because there are some treatments for that.

What symptoms are you talking about Rosie, Magnesium intolerance?

I am not too sure, to be honest, as i do not have much experience with MG, but from what i understand you have it for life. What i do know for sure is that magnesium worsens the condition. MG would be a differential diagnosis to ME.

Did he rule it out @Rosie ?

There was a Canadian study that found reduced brain blood flow during exercise. I would need to dig for the paper, it may have been in the 1990’s.

For those still wondering about effectiveness of masks, read on. https://multimedia.scmp.com/infographics/news/china/article/3047038/wuhan-virus/index.html

It reminds me of a day when i was a freshly graduated nurse in a position that usually requires some experience, but regardless here i was. We has a small operating room in the labor and delivery unit and there was this one doctor who used to come for emergency c-section unpleasantly drunk...

I was wondering whether our Norwegian friends have more information as of when the Cyclophosphamide paper will publish, if at all? It’s taking a very long time...

Well, there is progress. :rolleyes:

@Wilhelmina Jenkins i ‘liked’ your post because i agree with your interpretation, but it doesn’t mean i like it. i believe there is much work to be done for patients in getting access to the right information and the right recommendation. There would be great improvements in changing the...

It is simply that as pts report structural abnormalities to the cervical region, it adds to what we do not know, and how neglected we as a community have been when it comes to exploring what can go wrong. The simple fact of having ME means that in general patients receive less care and less...

hi Jonathan, many research questions can be generated, including -what is the clinical course of the illness, -what is the recovery rate -what is the incidence and prevalence? -what are the co-morbidities and risks of getting these diseases, associated with ME? -are slow onset and infectious...

It is such an unfortunate way to communicate with desperate patients who face tremendous unmet health care needs and as mentioned by someone in the call, such a low number of experts. Those who witnessed the early days of the outbreaks are in retirement age. I am also quite disappointed that...

I have been put on hold and i hear faint talking in the background... anybody else on the call, has it started yet? ah it’s starting now.

No one would consider reusing condoms for any reason (shortage or cost) by cleaning them with bleach or isopropyl alcohol... just a thought.