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there is an increasing need for epidemiological studies on a large cohort of patients, longitunal and very comprehensive. One would hope the NIH study would jump into action with their cohort.

Uhmmm. Since people mentioned him on the forums? A wild guess. I hope he has been invited for the incoming IACFSME

It was 400$ USD from what i remember and no, there were no refunds for this test. And yes for badge of honour, just like MTHFR and autoantibody panel.

I am done arguing with you @Hip. You are wrong.

This is linked to the following paper where Dr Jarred Younger is one of the main investigator. This is following his work on brain inflammation in ME patients published last year i believe, and he had promised to look at other diseases to see whether he could find signs of inflammation. No...

I am 100% sure because i am a nurse and i received formal training on isolation and infection control. There has been no safety testing on a safe procedure to disinfect a mask. While disinfecting a smooth surface may be easy using isopropyl alcohol, the same cannot be assumed for a porous and...

No, no, no. You cannot sterilize a face mask by soaking it in alcohol. The N95 are designed for a single use, 8 hours work if you will, provided they do not get wet. The other concern i would have would be the chemical exposure of the product used to ‘sterilize’ which is not the right term...

this is quite similar to XMRV times where some were getting access to the researcher- some still do- and back in the days following the publishing of XMRV paper, some patients felt suddenly quite ‘viral’ and demanded to be tested. It got quite nasty on the forums. Lessons learned: science...

Here is an interesting paper on cerebral blood flow: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4914489/ Cerebral blood flow and autoregulation: current measurement techniques and prospects for noninvasive optical methods

It makes me curious to know who is in the audience, students, lab researchers, everybody BUT surgeons and neurologists? And did this neurosurgeon discussed the failure/complication rates which includes death and other adverse events, but also includes those who were not made better? How does...

They are not designed to be sterilized, unfortunately. They are single use. Edit to add: Source : https://www.fda.gov/medical-devices/personal-protective-equipment-infection-control/masks-and-n95-respirators

Unfortunately the treatments are not all that effective. It may help patients sit up or stand up, but it does not improve enough to get people back to work. And the meds may help with BP or HR, but seemingly you can still have reduce blood flow to the brain. Why, would be the question. Is it the...

Yes, the prolonged bed rest study is what i had in mind. and in regards to the more severe patients, they made them sit up.

I would be curious to know -whether this happens with astronauts coming back from Space Station, and if yes, for how long -then whether this happens for a healthy control who has been paid to spend 1-2 months horizontal. -does this happen with other diseases, such as congestive heart failure...

Bolding mine.

An important paper. It is interesting that the experiments were performed in the Netherlands. I hope this will provide a paradigm change over there and all around the world.

It can be twice as hard from a doctor perspective to correctly interpret what the patient is describing. Often time, tired after exercise is viewed as ‘depressed’. The interpretation of that particular doctor will live in the patient’s chart forever. Same with OI. I remember going to my GP the...

From the experience of Dr Bell and his pediatric cohort, ‘recovery’ needs to be defined. Decades following the mid-80’s outbreak, he reassessed his patients to see how they were doing. While patients themselves declared they were living a fairly normal life, Dr Bell noted that the patients had...

Dr Baraniuk’s team. Full text here Abstract Gulf War Illness affects 25–32% of veterans from the 1990–91 Persian Gulf War. Post-exertional malaise with cognitive dysfunction, pain and fatigue following physical and/or mental effort is a defining feature of Gulf War Illness. We modelled...

No Rosie, the yearly flu that makes its way around the globe is influenza virus https://en.wikipedia.org/wiki/Influenza This current virus that emerged in China is a different kind of virus, from the corona virus family, which also causes a respiratory illness but seemingly these coronaviruses...