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Interesting to see this Nikkan Gendai Healthcare article which seems to have no problem in labelling the post-Covid syndrome as ME/CFS. It mentions diagnostic symptoms and treatments. Linked on the Long Covid thread: Possibility of ME or PVFS after COVID-19, Long Covid

https://www.genome.gov/genetics-glossary/Copy-Number-Variation Copy number variation is a type of structural variation where you have a stretch of DNA, which is duplicated in some people, and sometimes even triplicated or quadruplicated. And so when you look at that chromosomal region, you will...

Posts about blood donation have been moved here: Organ donation and blood donation

I recently got an air purifier. I had seen the quantity of dust in the air in my lounge when the evening sun streamed in the windows, and it seemed a bit horrifying that we were breathing all of that. Also, I hoped it would reduce the amount of dusting needed. I chose a Winix Zero + Pro...

Yes, there is. For the benefit of those who aren't aware of the idiom, 'lift a finger' is used in phrases such as 'you never lift a finger to help me/yourself/someone'. It's used negatively to suggest that someone couldn't be bothered to do even the smallest possible action. It surely isn't...

It's worth a read. The inadequacy and inappropriateness of the response to a huge problem is remarkable. A lot of people will recover in spite of this app - so it's possibly going to create an enormous amount of false belief that the app works. There must be a proper trial done of it. That...

If I had a robot that could understand that abstract, I reckon it would also have better things to do with its time.

I'm struggling to muster up the energy and enthusiasm required to read this paper. From the abstract, it assumes a great deal that is questionable is proven.

I do think AfME has changed a lot, although I'm also sure that some on their Board and in their staff support BPS ideas to a greater or lesser degree. Even now, their messages and materials aren't always entirely helpful. I don't think support for DecodeME, even the active, constructive...

I hope that they can get the funding for the proposed double blind study - it would be good to have that treatment possibility addressed properly. Ron Davis also suggests in that video that the earlier work on red blood cell deformability may be correct. He says that the later work done which...

We have a thread on B12 as a treatment here: IM hydroxocobalamin (B12) treatment

Thanks for those great insights, Effi, thanks for making the effort. I found that Sorenson, Jason 2014 study yesterday with its finding of decreased BDNF, which, as you say, is at odds with the finding of elevated BDNF by this group. I found some papers suggesting BDNF is lowered in people...

I think the aerobic exercise is just being used as a challenge, to see what happens when people with ME/CFS do physical activity. Just looking at BDNF, it seems that the protein might have a role in our symptoms, and that exercise should increase the expression of the gene. So, at first...

Just in case we have any members on the eastern coast of the North Island who haven't caught up with the news yet, there is a serious tsunami warning with evacuation notices.

An active blog focused on claims relating to CBT and IAPT, by Dr Mike Scott. http://www.cbtwatch.com It describes itself as 'An Independent Mental Health Watchdog and Discussion Forum' It's not anti-CBT, but is anti-IAPT. There's a lot of well referenced material there that is likely to be...

It is a great article @mango. Good job Agnes Arpi.

For example: Circadian clocks and vascular function https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2848505/ So perhaps the patients were sampled at a different time of day than the controls. And/or the patients might have, on average, a delayed daily schedule compared to controls. That might...

I wonder how variable the two measures are for a single person with ME/CFS over time. As in, perhaps PEM changes the scores? Also, maybe circadian variation - and timing of tests might be a factor?

I haven't read this paper yet, but, from the abstract, it seems to be evidence against the idea of dysfunctional NK cells. Swedish and Norwegian researchers.

From the link for the webinar: