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That would be the smart approach - the draft guideline still had plenty of scope for CBT and exercise. If I were them, my strategy would be to divide, and conquer most. i.e. largely cede a small minority of patients that have an illness that has a bit of a biological cause - but CBT and...

Yes, he's a nice man, and he doesn't downplay how hard he found having 'chronic fatigue'. It's great that he is willing to front up and say he has the illness. But he's a bit of a double edged sword as far as being the national celebrity spokesperson for ME/CFS. Coming from a high performance...

With the constraints that the illness imposes and the great yawning void that is the need for advocacy, I don't think it's sustainable for each region in NZ to run its own charity, complete with comprehensive services such as moderated forums and independently developed resources. It's too easy...

Yeah. The TVNZ program tonight was exactly as I expected - this program very much covers issues in soundbites. So, the information is superficial, presented by two young doctors with nice white teeth and bouncy personalities. The item was pretty good at getting the message across that CFS is...

The article is well-meant, even good in places. But I can't make sense of this. They seem to be suggesting that their unifying hypothesis is 'viruses (an acute infection or a reactivation of viruses) causing ME/CFS symptoms'. As hypotheses go, it's, well, pretty vague and limited. What about...

Likely selection bias. Cherry picking Null result. Sticking with the planned conclusion despite a null result, with a spin that will inevitably make mothers feel guilty and reduce the need for proper biological investigation of the causes of the conditions (which could lead to a better...

I think the evidence for the double spike in ME/CFS is rather weak. Although, it certainly would be interesting to know if there is any age pattern in Long Covid incidence that isn't directly related to Covid-19 incidence.

This protein expression stuff is exciting I think, and it looks like we have a number of teams interested in it. @DMissa I am tempted to leap into googling each gene where expression has been found here to be down regulated, to find out what it does. I've been looking at the Human Protein...

In the wake of the pandemic: preparing for Long COVID (2021) https://www.euro.who.int/en/health-...of-the-pandemic-preparing-for-long-covid-2021 discussed on the WHO thread...

That makes as much sense as deciding someone who has been in a car crash and now has a damaged spleen and a broken leg can only ever be labelled as 'car crash victim with broken leg', because saying that they have 'damaged spleen' as well would prevent the broken leg being identified. And that...

I've been searching to see if anyone has been looking at Long Covid with animal models. I haven't found any so far, but this paper at least acknowledged that it will be something to prioritise once vaccines are rolled out. Animal models of COVID‐19 hyper‐inflammation, 2020

I feel sure that there must be similar post-infectious fatiguing illnesses in animals; it seems highly unlikely that humans would be special in this. If we could find just one, it could give us an animal model. There's this 2021 report about a ferret model for Covid-19 - Dose-dependent...

I heard a bit of this yesterday. I also had 'lots of complex feelings' about it. The women talked about how dismissed they had felt by people in the medical system when advocating for their children with rare disorders. And how they did not want to be the annoying person who persistently...

I'm also not a fan of animal testing, but infecting some ferrets or hamsters and then, sometime later when they aren't shedding virus, checking all the tissues for virus sounds possible. The difficult question of course is whether these other animals develop post-viral fatiguing syndromes...

When I was 10, I had a year off school with something that was diagnosed as ME, and then I recovered. I don't know what caused it, but I wasn't under any sort of stress then. When I was 16, I had glandular fever (presumably EBV) and shingles - at the same time. I had shingles blisters around...

I can't remember now, but it was while I was on the course of antibiotics. And it took months to not be noticeable.

Fair enough. Good on them for getting some advice, and choosing who they get advice from well. But, if they were writing about an Ebola outbreak, would they talk about managing both the fatigue that the medical staff experienced from working long, emotionally demanding shifts and the...

The abstract suggests the authors fundamentally misunderstand what Long Covid is. It looks as though they don't understand what 'malleable' means either. I hope they meant something more like 'flexible'. It is a very odd choice in that sentence - how could the editors and peer reviewers have...

I think the 'psychiatric' in 'persistent mix of somatic and psychiatric symptoms probably refers to things like 'fatigue'. But yes, about the worry about the ME/CFS study, me too. Given that Walitt has been a leader of the NIH ME/CFS study, I hoped this paper would give a hint of pathologies...

That's bizarre MSEspe, that Singapore article doesn't mention sore throats at all. The closest it comes is "several studies have affirmed its (i.e. harsh parenting) negative associations with subsequent internalizing and externalizing symptoms among children who experience harsh parenting". It...