Search results

Yup

If a person with ME/CFS or a researcher uses the illness name 'CFS', many people active in the ME/CFS community will assess the chances of that person either not being aware of ME/CFS politics, or holding BPS views as higher than if they used 'ME/CFS'. That's not necessarily right, but it does...

It can quite easily be dire even without Gerada and Greenhalgh. In my region of New Zealand, we got the regional health authority online guidance for ME/CFS for doctors improved to something that was pretty good. I told my GP about it last year, and she said that she had seen the update...

This video features Jessica, a physiotherapist from Calgary, Alberta, Canada who has recently become aware of ME/CFS and the issues around exercise. LongCovidPhysio - Jessica "Breathing Pattern Disorders", video 2021 I think she is someone that Canadian advocates might benefit from knowing about.

A post has been moved to its own thread here: LongCovidPhysio - Jessica "Breathing Pattern Disorders", video 2021

I thought this was a very interesting video, as much, if not more because of the demonstration of how to be a good health professional than anything about breathing e.g. listen to what your patients are telling you; keep learning; keep records; don't think that therapies you've tried before...

Yes, I do wonder how much basis this idea of 'faulty breathing' without any physiological basis has - that is, 'faulty breathing' that can be fixed just with behavioural advice. Butyeko is mentioned as one approach to correcting faulty breathing, but I had the impression there wasn't much...

Just by the way, I'm in New Zealand.

Case report from a team in Slovakia using CPET for investigation of an adolescent with chronic fatigue - thread here: Case report: Young and exhausted, Oleksak et al, 2021 Filip Olekšák, Peter Ďurdík, Ľubica Jakušová, Tomáš Turčan, Peter Bánovčin Department of Children and...

Positives are that two day CPET was used to understand what was going on for this young person and there was knowledge of PEM as a defining characteristic of CFS. It was acknowledged that the CPET results did not fit the pattern of CFS. Rapid, disordered breathing was identified as the cause...

Has there been any reaction from Long Covid groups?

This thread might be interesting Xalexon; maybe it's something that hasn't been considered. Prevalence of biliary acid malabsorption in patients with chronic diarrhoea of functional characteristics: a prospective study, Flores et al, 2021

Here's a 2020 BMJ paper on this: https://fg.bmj.com/content/early/2020/09/22/flgastro-2020-101436 Bile acid diarrhoea: pathophysiology, diagnosis and management

BAM! to ideas of functional illness (Bile Acid Malabsorption, that is.) BAD (Bile Acid Diarrhoea) Seems like the detailed physiology is fairly well understood: Of course, every participant who didn't qualify for the Type 2 BAD diagnosis was left in the functional illness bucket. Cos...

There's the issue of how long recovery might take, and if it happens, and then of course also the issue of if 'normal' is actually attained in recovered cases. That is, how complete the recovery is. It might be that some infections leave everyone slightly damaged, but the level of damage can...

The only thing interesting about that diagram is how someone could go to all that effort with the coloured arrows, and the little pictures of the bodily organs in case people weren't sure what they meant by 'heart' etc, and still have 'score throat' listed as a symptom.

This thread How Might Ativan, Clonazapem Increase Strength? seems relevant, at least for answering the first question I had, which was 'is there fairly strong anecdotal evidence of lorazepam improving ME symptoms?'. Several members (at the severe end of the ME/CFS spectrum) have reported...

To me, it seems like catatonia is more like a symptom or group of symptoms than a disease. A sort of shorthand for ‘someone not acting normally’. I don't think I have any of those signs, although no one has tried to 'adjust my body' lately. It's entirely likely that I might resist that, and...

Here's the Sci-Hub link: https://scihub.wikicn.top/10.1016/j.amjmed.2005.07.047 :) The BPS researchers in New South Wales, Australia continue to be keen to research the psychostimulant Modafinil. And, as far as I am aware, the Royal Childrens Hospital in Melbourne continues to prescribe...

I've added a thread for it here: Does Methylphenidate Reduce the Symptoms of Chronic Fatigue Syndrome?, 2006, Blockmans et al