Search results

I've sent a short note to Tegan Taylor at the ABC, to add to her pile of responses. Perhaps others could too - not concentrating on past problems at the ABC, but noting authorities around the world now recognise that psychologically based therapies don't fix ME/CFS. And mentioning the effort...

An article this morning from Radio NZ - mentioned a Long Covid facebook group and research plans Link here:Possibility of ME or PVFS after COVID-19, Long Covid

A pretty good New Zealand article (audio or transcript) https://www.rnz.co.nz/national/programmes/first-up/audio/2018781716/covid-long-haulers-fighting-to-be-heard

A reliable source who had the relevant mushrooms growing in their back garden, and tried them, several times, found no change in ME/CFS symptoms. With my 'mother' hat on, I'd say that causing 'functional connections in the brain to stop working as before and new connections to be formed'...

It's nice that the researchers seemed to end up understanding that PEM is a fundamental symptom of ME/CFS. It's a shame they didn't know that before choosing to spend their time on a study characterising CFS. No, 'These results question the clinical usefulness of searching for CFS subgroups...

Thanks Snow Leopard, link added. Here's a recent overview of studies of the pathology, some in humans. Neurological Disturbances of Ciguatera Poisoning: Clinical Features and Pathophysiological Basis, 2020, L'Herondelle et al