Search results

  1. B

    Trial Report Possible Markers For Myalgic Encephalomyelitis / CFS Developed In Long Covid: Utility Of Serum Ferritin And Insulin-like Growth Factor-I,2023,Yamamoto

    I was trying to think my head around the potential 'confounder' of the fact that whereas those without a condition will, as a group of females in particular, include quite a lot of people who have been allowed to be anaemic or at least really low in ferritin due to the way the health system and...
  2. B

    Trials we cannot trust: investigating their impact on systematic reviews and clinical guidelines in spinal pain, 2023, O'connell et al

    Indeed, the point made in the abstract about 9 out of ten of these reviews (of which 85% were highly impacted) being positive and effectively voting positively for the treatment makes it really obvious this isn't just an issue of bias and selectivity in those that end up being reported. As far...
  3. B

    Objective sleep measures in chronic fatigue syndrome patients: A systematic review and meta-analysis 2023, Mohamed et al

    This. All of this in the two quotes. I'm impressed someone seems to have 'got it'. I do think also that there, just anecdotally from meeting others with ME over the years, does seem to be 'those that get significant sleep reversal' (and for me PEM is either a part of it/trigger or it is...
  4. B

    Psychotherapy including CBT and other counselling - benefits and harms

    the link didn't seem to work, but I seem to have found the same article here: https://www.bps.org.uk/psychologist/when-therapy-causes-harm
  5. B

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Good point about silly season approaching and whether any who might be able to provide friendlier articles might be able to bear that in mind and provide a few alternative spoon-feeds
  6. B

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I'm interpreting that what you mean is that they are going for this actually being a 'political article' for those 'in the game'. I think you have a point there. It is like the misogynist classic when a woman is being picked on and a bystander should call it but instead chooses to label it as...
  7. B

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Indeed. Partcularly if someone listed how much of her time (paid for by her tenure) and how much funding or payment either directly or indirectly she has had for each of her 'studies/papers' and what they consisted of: repetition of the same thing over what decades ........that Nice basically...
  8. B

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Did they ever actually publish the 'pre-bunked' article the same lot pre-published on '8 errors of' which turned out to be their own errors in blagging they were and weren't just things they wished were true? Because if not I can't help but think this is their weak, eventual attempt at doing...
  9. B

    Lightning Process - discussion thread

    woth getting the Health and Safety Executive on these things too given how specific she is being and how this could be being used where a job or environment or in place of proper Occupational Health adjustments and other elements is unsafe and such ‘coaching’ might effectively intimidate or...
  10. B

    Lightning Process - discussion thread

    how can anyone be so irresponsible and seemingly unaccountable - I’m guessing she just turns her eyes the other way at what she is causing/propping up or is brainwashed/deluded herself … so disturbing how bigotry can get disguised under people kidding themselves they are helping rather than...
  11. B

    PEM: a continued stress response / failure to enter a rest-recovery phase?

    Sorry if I didn't make clear - I was making the point about the method of taking samples (whatever they are looking at/measuring) being developed so that it can be done without requiring trips and waking up etc is something that could be very important indeed. Particularly noting how and when...
  12. B

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Sidenote that sort of is more of a discussion about how (perhaps not with a legal case but we need to begin to show what they must either have seen or chosen to ignore) even with things like CBT it should be obvious that the coercive techniques + the particular condition they have chosen have...
  13. B

    PEM: a continued stress response / failure to enter a rest-recovery phase?

    @rvallee posted the following thread: https://www.s4me.info/threads/high-resolution-daily-profiles-of-tissue-adrenal-steroids-by-portable-automated-collection-2023-lightman-et-al.33799/ Which has some interesting methodology for measuring cortisol EDIT: adrenal hormones more continually...
  14. B

    Functional Neurological Disorder (FND) - articles, social media and discussion

    "People with FND walking problems (Gait disorder) can sometimes find that they can’t walk normally, but they can run or walk backwards. This seems very strange but actually makes a lot of sense in terms of how we know the brain works." I would be interested to check the veracity of this one...
  15. B

    Functional Neurological Disorder (FND) - articles, social media and discussion

    "If the structural changes have always been there, then that’s clearly important but we still don’t know if they represent an obstacle to improvement. If the structural changes happen because of the condition, then we need to help patients understand that FND has changed their brain, but...
  16. B

    BBC Radio 4 - ‘Prioritise energy-giving activities’: Why energy management is important and how to do it

    Agreed it is a naughty minimisation jobbie, but worse they seem oblivious to that. In theory yes the world needs to get their head around energy vs time, and of course I sit and watch those without health issues and their chosen 'busyness' and am astounded. It isn't our problem or anywhere...
  17. B

    United Kingdom: London - Royal Free Hospital CFS services

    They missed off the following? : :whistle: , Shaggy It Wasn't Me (Official Music Video) (uncensored)
  18. B

    United Kingdom: London - Royal Free Hospital CFS services

    Do you mean like those people who create problems that didn't/shouldn't exist in order to claim to be a saviour that wants to fix it, rather than errm choosing not to create the bigotry in the first place and when you encounter it doing what normal people do and stating it is misinformation and...
  19. B

    Biopsychosocial complexity in functional neurological disorder 2023 Joos et al

    Not to mention when they have disability or exhaustion effects or adjustments needed for things like speaking or walking I would hope that for their condition the exact wrong information and advice has not been OK'd for laypersons to levy at them. I'd imagine for example someone interrupting a...
  20. B

    State of Mind: Is Long COVID Linked to Mental Illness?

    True, but I suspect there is also dissociation happenning here: she is so fixated on retorts to defend what she has said that she isn't capable of stepping back to see why on earth she is saying it in the first place. Like someone who causes havoc in order to 'get x' without stopping to think...
Back
Top Bottom