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  1. Kalliope

    What symptoms of ME that you personally experience is (a) not shown on your medical file and/or (b) not in the ME literature.

    I haven't yet read this thread, but am looking forward to. I've been pondering about something mentioned by a Long Covid patient in the recent Yahoo!life article A COVID-19 long-hauler details his year of 'hell'. He wrote he's "often hit with a sense of jamais vu, the big sister of deja vu. I...
  2. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    NIH: NIH launches new initiative to study "Long Covid" NIH: Open funding opportunities
  3. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    interesting to hear from Hungarian doctors and their take on Long Covid, so thank you for making a summary. I understand you're not very impressed, though..
  4. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This comment to the article from Frances Ryan has received 1 000 likes so far
  5. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yahoo!life : A COVID-19 long-hauler details his year of 'hell' Senior Editor Ed Hornick got ill with Covid-19 over 10 months ago and shares his story. Mentions ME a couple of places. I've wondered why Yahoo!life has had some rather good, in depth articles on Long Covid.
  6. Kalliope

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    So true! And it brings so many absurd situations where you don't even know where to start regarding explaining, so you just don't. Like when a housebound friend of mine was adviced to go out on the town and have some wine with her girlfriends. And me receiving advice on which shoes I ought to...
  7. Kalliope

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    Exactly! The focus should be "What is important to YOU?" and "How can we make that happen"? I'd hate to have to follow a set activity programme by a therapist. I'll be able to do more in total when I am free to follow my own pace, by continuously adjusting activities according to the...
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Here David Strain clarifies this as a misunderstanding and offers an apology:
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