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  1. rvallee

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    That sounds like a lot of CBT. And very expensive. And not very effective. How does that even work? What I know of CBT is that it's very repetitive and loopy, you can pretty much cover it in 10 minutes. Sounds like either someone made a lot of money, or the health care system wasted a lot...
  2. rvallee

    Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program, 2024, Lorman et al.

    They did health record studies on conditions literally characterized, hell defined, by basically not fitting into any typical health record concepts and usually not even coded where it does, or not coded properly, or miscoded. Again. Another one. Good grief. They're just pissing the whole thing...
  3. rvallee

    Genetic tracing of market wildlife and viruses at the epicenter of the COVID-19 pandemic, 2024, Crits-Christoph et al.

    One of my favorite thing in the whole pandemic has been how the pandemic minimizers and pushers of herd immunity, "lockdowns" are worse than illness, and Long Covid is fake / mass hysteria / caused by the tiktoks, also tend to be very interested in the notion that it was either a lab leak or a...
  4. rvallee

    Review The effect of massage on patients with chronic fatigue syndrome: A systematic review and meta-analysis 2024 Li et al

    Hey, maybe they discovered the first true perpetual motion mechanism. Don't dismiss this out of hand! A > B > C but C > A which means that mathematically you get a mutually interacting quantum field of motion so that the universe must respect the expected symbols and the expectations behind it...
  5. rvallee

    Investigating Patient and Clinician Opinions on the Integration of Psychometrics Into Testing for Disorders of Gut-Brain Interaction, 2024, Law et al

    Again, if you'd run a corporate/marketing focus group like this you'd just be laughed out of your job and dismissed with your whole work thrown in the trash. Unless you happen to work for a company that actually wants to run a pretend focus group where all the participants quote straight from...
  6. rvallee

    What medical specialty should look after ME/CFS?

    Moved posts It needs its own specialty. Which is unlikely to happen any time soon. So any alternative model will be temporary and less effective, a compromise that makes all outcomes worse. The only question is how much worse. Although rheumatology does seem to be the least worse option. Most...
  7. rvallee

    United Kingdom: News from #There for ME

    Let's not let perfect be the enemy of good. As long as they adapt to feedback we should be focused more on getting it right than objecting to it. As they say, it's a small operation and it usually takes many years for most people to see the depth of depravity of some of the people involved like...
  8. rvallee

    No signs of mast cell involvement in long-COVID: A case–control study, 2024, Lenning et al.

    What would then explain the odd reactions people are having to all sorts of things that they never had problems with before, and started soon after COVID? I don't know if mast cells made sense as an explanation for that, although it was a reasonable hypothesis, but this is definitely a common...
  9. rvallee

    Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey, 2024, Wood, Unger+

    They're close to being about where the state of knowledge in the patient community was around June of 2020. This would be disappointing if it was a random group of teenagers. They'd have to be really lazy to be this bad. At this rate maybe they'll even catch up to the whole summer of 2020 by...
  10. rvallee

    News from Australia

    Interesting thread about players from the Australian Football League and growing reports of illness. It seems to be a simple text search centered on the keyword 'illness' but still interesting. And of course if anyone noticed how things were going at the Olympics, the same pattern was...
  11. rvallee

    News from Austria and Switzerland

    Post-viral syndromes: New National Reference Center opens at the MedUni Vienna https://www.meduniwien.ac.at/web/en/about-us/news/2024/news-in-september-2024/post-viral-syndromes-new-national-reference-center-opens-at-the-meduni-vienna/ The Austrian Ministry of Health has commissioned the...
  12. rvallee

    Impact of Spa Therapy on Symptoms and Quality of Life in Post-COVID-19 Patients with Chronic Conditions, 2024, Maria Costantino et al

    Sometimes you just have to make bold statements like this. As in really those statements have to be made because holy damn do people get confused by basic stuff like this just because, pure coincidence, it mostly invalidates whatever it is they're doing.
  13. rvallee

    News from Germany

    So, yesterday a public roundtable was held, lead by health minister Lauterbach, discussing Long Covid and the publication of a list of off-label medications that MDs can consider prescribing. There was some mention of ME/CFS, but one controversial decision so far is that non-COVID ME/CFS, or...
  14. rvallee

    Review Acupuncture and moxibustion for chronic fatigue syndrome: A systematic review and network meta-analysis, 2022, Fang et al

    I genuinely hope that we see more of those in the future. The non-official quackery using the tools of official quackery is probably the most effective way to change. It will still take years, though, since this process is built to be slow while extracting as much attention and funds as possible...
  15. rvallee

    Sweden:Maran season 2 - How did we end up here?

    Oh, this ain't no twisted version, 'tis a normal Scotsman. There is no other kind that leads to other outcomes. Well-intended pseudoscience usually does as much harm as the poorly-intended one, but when it has the power of law, when it's enforced by authorities, it becomes catastrophic. The...
  16. rvallee

    Exercise does not cause post-exertional malaise Gulf War Illness: A randomized, controlled, dose–response, crossover study, 2024, Boruch et al.

    The brain, famously not physiological. Not a dualist. You're the dualist. See, the trick to cure diabetes is you take people who have normal insuline metabolism. Then, voilà, no more diabetes. It really is that simple. You can apply the same with any other disease. Dementia? Just find a group...
  17. rvallee

    Impact of Spa Therapy on Symptoms and Quality of Life in Post-COVID-19 Patients with Chronic Conditions, 2024, Maria Costantino et al

    The joke that is evidence-based medicine in a nutshell. It definitely is pleasant. Pleasant things feel good. Do they "mitigate" symptoms and enhance quality of life? Of course not, that's silly. But it does feel pleasant, and if you substitute a real end point for that, then you can pretty...
  18. rvallee

    News from Scandinavia

    There's a huge issue in AI with the use of AI-generated data being used to train future AIs. Given how commonly AI hallucinates and gets basic facts or reasoning wrong, there is currently a huge amount of work going through how to make it work without creating a faster process of garbage data...
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