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The lack of any mention of not just ME/CFS but other chronic illnesses, this has to include POTS/dysautonomia, IBS and other issues commonly resulting from infections, is a major disappointment but something that can be influenced. I have no doubt that many LC advocates are pushing for it and...

Those are real explanations leading to useful, practical outcomes. The general fluffy meaning of providing meaning like the one in that blog is always based around cultural tropes and other weird biopsychosocial nonsense derived from old narratives about how our lives are empty and devoid of...

Critics of this model are correct and are speaking to our own experience. This is literally what happened from day 1: gaslighting, dismissal, denial. But, hey, if you ignore that, it should lead to more holistic care. Assuming that more holistic care is a desired objective, and it seems here to...

It works every single time. It would actually be weird if they didn't do it again this time. Even with the NICE guideline working against the ideology, it was and is still resisted and there has been zero harmful consequences to anyone but patients for it. And there was a LOT of spotlight...

I'm sure they believe in the broader construct, the underlying goal of proving the ideology correct, but they obviously know that their means and methods are wrong, so in the end it isn't a question of malice or incompetence, but of either incompetent malice or malicious incompetence. The...

Seeing arguments like this being just as common as they were a century ago makes me think of the Sophons in the 3 body problem. In the books or TV series, it's this imaginary technology that allows a technologically superior civilization to effectively end our ability to progress scientifically...

I really used to think that this kind of nonsense had been left behind centuries ago in scientific professions. This is just wild hubristic nonsense and it doesn't bother building up a coherent point at all. It's seriously wild to raise the issue of SSRI overprescription as if the people are...

Impressive jumble of logical fallacies, summed up mostly as: ackshually, sophistry is good and someone has to say the quiet part loud. Beliefs are something to behold. They speak of overwhelming evidence, when they have none at all, at most innuendo and a heaping of logical fallacies. Neither...

There's really no need to bring in trauma. At some point you simply learn that there's no point so you just stop, it's a very rational calculation that see all cons and no pros. You may as well petition the king to end his reign for it is unjust to the masses and why is everyone in the court...

Then back again, I guess. Hard to say, really, but this is what it looks like to me. Nothing to dispute that anyway, while everything points to it.

Just want to chime in that this is because of authoritativeness, and not really possible for us to improve. The way Web search works is through network credibility. A Parkinson's website will be highly visible because other credible websites, like the NHS and many more, will link to them...

Zero chance of that. See also: Phil Hammond (?), the dude who worked at Crawley's clinic. He was completely oblivious and utterly baffled at hearing it from patients that he himself treated. These people are as completely insulated from the outcomes they create as any aristocracy or politburo...

And in some perverse way, Long Covid feeds into this, as it brings even more new patients, making it easier to bury older patients under the guise of focusing only on newer/easier patients. They will not run out of new patients to scam, until maybe decades in the future when/if too many people...

They're performative trials ;) Sometimes Orwellian ways breach the 4th wall and give you a peak behind the scenes. But we already had that several times, and no one is ever going to beat the GASLIGHT model. And really this entire way of doing things is just performance, they are performing the...

Aren't researchers generally supposed to not repeat the same research? Expected to look at whether something has been done before, dozens of times in this case, and not simply try again and again the same way with the same intent and purpose? This is a feasibility trial for generic stuff that...

Seems like there is an error in thinking when it comes to subjective questionnaires, that the same principle that applies to objective measurements must also apply here. Obviously a thermometer must give consistent values at every measurement. Same is true of any scientific instrument. If you...

I think it's somewhat of a pun about POTS, that also suggests something hopeful, but there's nothing really supporting that. Not a very good one.

Seems like there was a demonstration, in the form of a funeral march, for ME/CFS and Long Covid awareness today in Zurich, Switzerland: And in Vienna, Austria:

Without any evidence to support it. An extraordinary claim with no evidence, a mere traditional myth. The same mistake repeating itself identically thousands of times over without anyone learning anything or even being bothered that they are repeating the same mistake over and over and over...

Average Victorian secondary student misses equivalent of three terms of school, new figures show Paywalled: https://www.heraldsun.com.au/victoria-education/average-victorian-secondary-student-misses-equivalent-of-three-terms-of-school-new-figures-show/news-story/cf10e73aaec6c055c4add9920a7bc3a5...