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  1. rvallee

    Boom and bust, another ME/CFS myth? - ME/CFS Skeptic blog

    More importantly, the model is that we are afraid of activity. Where the hell would a 'boom' occur, then? Especially given that there is no such evidence, and this consists of normal activities of daily living in most cases? Of course nothing in this model is intended to make sense, but even in...
  2. rvallee

    Persistent postural perceptual dizziness PPPD in pediatric patients after COVID-19 infection, 2024, Noij et al.

    Those papers are so bizarre. Well, actually, their purpose is obvious: it's a paper. That's it. They describe what they did, without much reason or evidence for it, and... what? Should clinicians use those treatments? They sure don't look any effective. What is the imagined value of such a...
  3. rvallee

    Guardian article on origins of CBT : I have OCD. Some cognitive behavioral therapy techniques were totally wrong for me, April 2024

    Even proper RCTs are generally bad, especially when there's a lot of bias involved. But that they simply decided to not bother that active participation is impossible to control and that all they could do was biased randomized trials was good enough is scandalous. It basically set the entire...
  4. rvallee

    Dysregulation of tetrahydrobiopterin metabolism in ME/CFS by pentose phosphate pathway, 2024, Bulbule, Roy et al

    Somewhat related. In mice. Mast cell–derived BH4 and serotonin are critical mediators of postoperative pain https://www.science.org/doi/10.1126/sciimmunol.adh0545 Postoperative pain affects most patients after major surgery and can transition to chronic pain. The considerable side effects and...
  5. rvallee

    Improving Quality in Adult Long Covid Services: Findings from the LOCOMOTION Quality Improvement Collaborative, 2024, Darbyshire, Greenhalgh+

    Wow. I saw it. How disrespectful. Dishonorable, even. But I guess that's the answer: PESE/PEM in Long Covid? Yes, be careful, genuine. ME/CFS, characterized by PESE/PEM? Screw you filthy trolls! She seems mostly to write those papers to fluff up the reputation of the clinics. There's basically...
  6. rvallee

    Improving Quality in Adult Long Covid Services: Findings from the LOCOMOTION Quality Improvement Collaborative, 2024, Darbyshire, Greenhalgh+

    So they started with wrong ideas, and slowly, begrudgingly, shifted towards accepting what we said for decades, but without acknowledging that or being bothered by it. So those clinics are still largely useless, but do slightly less harm by being stuck on half the old paradigm, with zero...
  7. rvallee

    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    I annoyingly chime in with this occasionally, but: also something the software industry has mostly solved. It used to be that programmers were judged in terms of productivity by the lines of code they wrote. It's a complete dog shit measure, it doesn't relate to productivity at all. Software...
  8. rvallee

    The Long Read: Excellent BPS papers

    It's like Silicon Valley tech decks (that's how they're calling Powerpoint presentations these days if you've been out of the loop for a while like me :laugh:) but far dumber and far less realistic. Surprised they're resisting the need to put some quantum consciousness in there somewhere...
  9. rvallee

    News from Germany

  10. rvallee

    COVID-19 and Mental Illnesses in Vaccinated and Unvaccinated People 2024

    As long as they use questionnaires with overlapping questions, this is meaningless. But of course they use those questionnaires precisely because it gives them a lot of false positives, to fit in with the old psychosomatic myths. To get valid results they would need to screen out anyone with...
  11. rvallee

    NHS England web pages on ME/CFS

    Well this might make the weird, and false, argument from our biopsychosauruses that PEM constitutes a completely new and never-before-heard-of definition of ME/CFS a tad bit problematic. Not that the substance of their argument is of any important but still. They chose to ignore it in all...
  12. rvallee

    ..an innovative multi-component long COVID treatment program based on central sensitization with preliminary patient satisfaction data 2024 Munipalli+

    Randomly reminds me of how Cybertruck owners are generally ecstatic about their new purchase. For a few days. Only for a few days. Then reality sinks in that they bought a massively expensive lemon, but no backsies.
  13. rvallee

    ..an innovative multi-component long COVID treatment program based on central sensitization with preliminary patient satisfaction data 2024 Munipalli+

    I assume that they mean here in the case of Long Covid. Which isn't even true, but whatever that never stops them. It's long been a strategy, that, yes, something like this has been tried dozens, possibly hundreds of times before, but not on a Tuesday following the grape harvest in the region of...
  14. rvallee

    RETRACTED: Post–COVID-19 Condition in Children, 2023, Hahn et al

    They're clearly amateurs and not well-connected, though. Everyone knows that when you get caught like this you treat your critics as hostile, accuse them of all sorts of dirty things, work reporters and editors behind the scenes and abuse positions of authority to get your way. They could have...
  15. rvallee

    Characterizing Long COVID in Children and Adolescents. 2024, Rachel S. Gross, MD, MS et al

    I'm baffled by the overarching claim about symptoms being that different. The differences are trivial. And they don't appear to have included the more typical symptoms that are characteristic of LC like PEM, which makes it an undercount. We pretty much see the same rough clusters in adults...
  16. rvallee

    ..an innovative multi-component long COVID treatment program based on central sensitization with preliminary patient satisfaction data 2024 Munipalli+

    It's odd how they keep using words like 'innovative' and 'novel' for the same old recycled garbage. I guess they understand that to suggest something, it has to be different from what's out there, since it's known that there are no effective treatments, so they tack on fake labels on the same...
  17. rvallee

    Opinion Post-exertional malaise – A functional brain aberration?, 2024, Wyller

    Dude just has zero idea what he's talking about and he can't shut up about it. Just the same old word salad tossed a few times for good measure and put back in the same place.
  18. rvallee

    An investigation into General Practitioners’ experience with Long Covid, 2024, Farrell et al.

    What I'm wondering here is who isn't doing their job. Obviously there are processes in place for this. Why is it stalled? Just denial? Dysfunction? Obviously there is so much to learn yet but the idea of just waiting around pretending like it doesn't exist is not ethical and unjustifiable...
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