Search results

Thank you very much to the following organisations for adding their support to the Open Letter, and for promoting the petition to their members: Millions Missing Stavanger (Norway) Norwegian ME-association ME/CFS Israel 5630 signatures on the petition We'd like to send emails to ME/CFS...

:)

Those factors (bullying and so on) may increase the risk of FND. And they may not. It doesn't sound as though this paper sheds light on that. Well, yes, "If". But we still don't know if FND is more prevalent in these young people. Four cherry picked cases won't tell us much about...

I did have the same thought. I suspect that chronic Ciguatera and Gulf War Illness are ME/CFS-like responses to toxins, no trigger infection needed. But if an answer was found for post-infection ME/CFS, then there would be good clues to explore for the rest. It's a name that works for the...

Added, thanks

Great news. Seems our disease is the trendy new thing.

Thanks Solstice, ME/CVS Vereniging added.

Thanks very much to Post Viral Research Aotearoa for supporting the open letter. https://www.pvra.nz/ This is a New Zealand-based research foundation.

I thought it would be useful to have a list of all the active international and national level ME/CFS charities and research foundations not specific to one research institution around the world. We can add to it as we find them. Please post below with organisations and a website and contact...

A German team: Hölkeskampring From the introduction: So, they are hypothesising that the lack of good evidence for autoantibodies in Long covid so far might be because the auto antibodies are being bound in tissue, rather than floating around in the blood. They suggest that inflammatory state...

Association Francaise du Syndrome de Fatigue Chronique, Appelation Internationale: EM/SFC We now have an organisation news thread for this CFS organisation. They have published a guide to pacing.

I think getting more local and national organisations added to the list of supporting organisations in the Open Letter thread is very important. We are working on a list of ME/CFS and Long Covid related organisations and whether they have been contacted or not, with a view to doing more...

There's a great comment by @Peter Trewhitt on David's blog - it summarises the issues well.

US based authors The title is difficult to understand and probably misleading. As far as I can see, there is not in fact proof provided of the mother having been anything other than a concerned parent trying to get help for a child with a wide range of health issues. The test is also...

It's tempting to make fun of this paper, but these people appear to be claiming to be experts in Long covid and are treating significant numbers of people. Which is, I don't know, sad? They appear to have no doubts about the that constitute their control treatment. I guess they missed the...

In case you were wondering... ('among other things' is not specified)

A chart of the increase in signatures over time. It doesn't include signatures from today, NZ time. You can see things have plateaued. Please do keep sharing the petition link https://chng.it/xwQ9bGgcdL if you can. Here's the list of countries represented, and number of signatures. 57...

Thanks so much to the European ME Coalition (EMEC) for supporting the letter. :emoji_bouquet:

I've made a thread to discuss what I think is that important finding of the reduced oxygen extraction in the people with Long covid: Muscle oxygenation [as assessed by NIRS - Near Infra-Red Spectroscopy]

This study found reduced oxygen extraction in the thigh muscles of people with ongoing symptoms after Covid-19 infections as compared to healthy controls: Structural and functional impairments of skeletal muscle in patients with [PASC], 2023, Colosio et al. The measure is "Δ[HHbMb]peak (%...