We do need massive new efforts. But part of that is lone patients telling people they know about the illness. It will get us somewhere. If people with ME/CFS stop feeling embarrassed, and are as open about our disease as people with other awful diseases, that will make a difference.
Bautista says he is from CFS Recovery.
Niklas Malmquist quotes CFS Recovery: (from @mango's link)
I don't know if Bautista alone is CFS Recovery, or if CFS Recovery is a bigger organisation.
It's really amateurish BPS. He chose a distracting background with people walking past, so each stop and start when he fluffs his lines are super obvious.
You aren't having a crash, you are having 'an adjustment period'.
Never mind that you aren't seeing progress in objective measures of...
I meant to listen to this, but the call was in the middle of my night and I didn't make it. Did anyone listen to the call who can give their overall impression? I can't access Twitter - those tweets linked above don't really say anything, summarising here in case they disappear:
"Gudrun Lange...
Oh Trudie, to have been thinking about these things for so long, and yet still not getting the difference between correlation and causation.
(cross post with Hoopoe)
I don't know, all I know is that the balance is more difficult than I realised when taking doxycycline for weeks on end to protect against malaria. I guess it's likely though that there is no free lunch.
Ideally, we would be fairly certain that there is a bacterial infection likely to be...
Further on the negative impact of antibiotics, this paper is specifically on reducing mitochondrial function:
Mitochondria as target to inhibit proliferation and induce apoptosis of cancer cells: the effects of doxycycline and gemcitabine, 2020, Dijk et al
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