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Curious about your take on this, @Jonathan Edwards. Presumably there is a massive shortage of these drugs at the moment and that is why there is hard rationing? Or not?

Sorry to hear about your bad experience there, @Fainbrog, and the fact that you're not back to baseline yet. Fingers crossed. Your experience is exactly what I'd expect to happen to all PwME without national guidance or pushing from our charities.

Thanks, found it - it's =AZU5vStV5WYMP8400mvzmNLm3OILi6a7JKrrqugdmL59o_4l8vtoMMoJcRF0_QlNrDNOHvBZvrj9jMxH1YdfwpN4h1jN1p7-A6NV04X9F7wy4uV4GkUtAovPCCYF2xnhGyCbqKITqPPMW9qQYct3xxVl&__tn__=%2CO%2CP-R']here.

Thanks, @Cheesus. I think the key thing is that if it makes sense for PwME to be classed as high-risk, we shouldn't have to argue it ourselves on a case-by-case basis to our GPs because that becomes a GP lottery. It looks as though you've already determined that PwME aren't classed as high-risk...

Just reading this interesting article from the BBC about drug developments for treating Covid. It includes: I imagine that as a PwME, my chances of getting Paxlovid if I became Covid-positive would be pretty much zero, even though a viral illness that I caught 35 years ago has caused ongoing...

I've been taking Epsom salts footbaths for migraines and had a speedy and substantial reduction in migraines since I started, which has been maintained for months as I've continued with them. I previously tried Mg capsules for three months with zero effect. I've read that some people don't...

I'm so sorry to hear that, @JemPD. How horrible to have such a stupid thing stuck forever on your notes. But it was very easy for me to get a SIBO test. I went to my GP, described my symptoms, said that I wondered if it was SIBO, and asked if I could have a test. He agreed and referred me. That...

Do you actually have 'somatisation disorder' in your notes, JemPD? Or just 'ME/CFS'? I managed to get a SIBO test (positive) and antibiotics on the NHS some years ago with no problem.

Thanks, Arnie, but the media won't use those pictures. They stick to reputable image libraries that they're familiar with and that their organisations have subscriptions to, such as Getty.

Thanks, @Joel - I can't handle milk, unfortunately, but my GP also said that the idea was to do a short course of PPIs to allow tissue to heal, but sent me off for this test because the PPIs weren't controlling the acid.

Thanks! I'll see how I go.

Thanks, Jo - that's very helpful, I'll read that before I talk to my GP. In my position, would you want to stick with a GP or get with a specialist? If so, any idea what sort of specialist (I can't afford to let this drag on and might end up having to try to find one of my own)?

Thanks, @Jonathan Edwards - that's all incredibly helpful and will save me going down a lot of unhelpful avenues. Good point! I'm surprised this hasn't come up anywhere.

Thanks for replying! Really helpful to have somebody who knows about physiology. There seem to be two basic things being suggested. One is to simply put your stomach back in place (repeatedly if necessary) through massage or drinking a whole load of water and dropping hard on your heels. The...

Thanks, Milo. I agree that there are risks of not treating GERD, and I'm in such pain with the heartburn if not taking anything that not treating isn't an option. But if I can fix the problem with physical therapy, I'd much rather!

Thanks! I tried something similar some years ago and did the same, I think.

Here and here are a couple of pages on the Livestrong site that talk about exercises and stretches for hiatus hernia...

Thanks, @Trish. Did you have trouble coming off PPIs? I'm concerned about rebound (I'm concerned about everything!). Stupid question, but does sleeping on a half-bed-length wedge (as you mentioned in another thread) force you to sleep on your back?

I hope it's OK that I'm posting about a non-ME/CFS problem but I've had worsening acid reflux and heartburn for a few months which is not better after four weeks of PPIs and Gaviscon, and I've just had a gastric endoscopy and been told I have a small sliding hiatus hernia. My concern is that...

That sounds surprising! Why would it not be more difficult? Are the disease mechanisms understood and is it known what it would take to tackle them?