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For some reason the first link links to an old link when you click on it. It should go to: https://batemanhornecenter.org/event/online-support-group-73/

ME Research UK An extensive review on ME/CFS has recently been published. The paper focuses on “symptoms, severity and burden, diagnostic criteria, causes and triggers" and "the complex pathophysiology and management of the condition.” Read more: https://tinyurl.com/mrx7sp8t

Related content: In conversation with... Louise Dye Louise Dye (University of Leeds) discusses a trial exploring the role of expectancy and gluten ingestion on symptoms in people with non-coeliac gluten sensitivity...

Plain English summary Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID-19 Condition (PCC) are chronic illnesses that affect multiple body systems. While the exact biological causes of these illnesses are not yet known, people with ME/CFS (pwME/CFS) and people with PCC...

Free: https://dl.acm.org/doi/pdf/10.1145/3643834.3661617 Sarah Homewood, Kari Okholm Just, and Olivia Bramm Johansson. 2024. The Unanticipated Use of Fitness Tracking Technologies During PostCOVID Syndrome. In Designing Interactive Systems Conference (DIS ’24), July 01–05, 2024, IT University...

https://www.healthrising.org/blog/2024/05/27/nih-chronic-fatigue-fibromyalgia-long-covid-brain-funding/ The NIH Wants Your Brain The NIH is looking for ME/CFS and fibromyalgia brains to better understand these illnesses The NIH wants your brain – it really does. (Not right now – later.) I...

Unfortunately it has come up in this bulletin. It's behind a pay wall. SUMMARY AND COMMENT Can a Symptom Clinic Help Patients Without Detectable Physical Disease? Bruce Soloway, MD, reviewing Burton C et al. Lancet 2024 Jun 15 Four or fewer sessions with specially trained generalist...

Also higher functioning people can be missed. I had read a couple of case studies of M.E. when I was mildly affected but didn’t relate to the long list of symptoms and level of impairment. When I deteriorated I then recalled reading the case studies. But at that stage it was too late to bounce...

https://www.thesun.ie/tv/13307746/big-brother-chanelle-hayes-wedding-husband-dan/ SHOCK DIAGNOSIS Big Brother’s Chanelle Hayes left bedridden and ‘in pain’ after her wedding day with husband Dan See Chanelle's tough health battle in the clip above Mary Gallagher, Senior Digital Showbiz...

Environmental sensitivities and scent-free policies: A guide for federally regulated employers and service providers (2024) - Canadian Human Rights Commission https://www.chrc-ccdp.gc.ca/en/resources/publications/environmental-sensitivities-and-scent-free-policies

Longer post I found on this: T-cell dysfunction in ME/CFS and Long Covid (Recorded on May 23, 2024) Video now available SPEAKERS Liisa K. Selin, MD PhD; Anna Gil, PhD, viral immunologists from the University of Massachusetts Chan Medical School (liisa.selin@umassmed.edu and...

From the Massachusetts ME/CFS & FM Association newsletter: https://massmecfs.org/component/civicrm/?task=civicrm/mailing/view&id=1385&reset=1 Hear Massachusetts Researchers Talk About T-Cell Dysfunction in ME/CFS and Long COVID Hosted by Research Renegade/Remission Biome, this roundtable took...

From the Massachusetts ME/CFS & FM Association newsletter: https://massmecfs.org/component/civicrm/?task=civicrm/mailing/view&id=1385&reset=1 Video of Dartmouth Medical Education Event Now Available In November 2023 #MEAction Northern New England (formerly #MEAction New Hampshire) hosted a...

From the Massachusetts ME/CFS & FM Association newsletter: https://massmecfs.org/component/civicrm/?task=civicrm/mailing/view&id=1385&reset=1 Register for the Autoimmune Registry The Autoimmune Registry Inc. (ARI) collects patient-reported data on all autoimmune diseases, including suspected...

NRW launches advice hotline for Long Covid patients Some people suffer from serious health problems after a coronavirus infection and sometimes also after coronavirus vaccinations. What happens to them when they can no longer work...

Free: https://www.sciencedirect.com/science/article/pii/S2589004224016316 iScience Available online 28 June 2024, 110406 Article Case-control study on post-COVID-19 conditions reveals severe acute infection and chronic pulmonary disease as potential risk factors Pritha Ghosh1+, Michiel J.M...

"Recognize M.E." (May 2024) (158 seconds) Bateman Horne Center 11 May 2024 BHC Education This powerful piece, delivered by Doctor of Physical Therapy Clayton Powers, recognizes myalgic encephalomyelitis (ME/CFS), a condition often misunderstood and overlooked despite its profound impact on...

https://openresearch.surrey.ac.uk/esploro/outputs/doctoral/Characterising-the-Electrophysiological-Properties-of-Cells/99893266002346 Doctoral Thesis Characterising the Electrophysiological Properties of Cells in Health and Disease Krista Samantha Pauline Clarke University of Surrey Doctor of...

Free: https://www.sciencedirect.com/science/article/pii/S0306453024001616 Anouk Vroegindeweij, Niels Eijkelkamp, Sjoerd A.A. van den Berg, Elise M. van de Putte, Nico M. Wulffraat, Joost F. Swart and Sanne L. Nijhof, Lower hair cortisol concentration in adolescent and young adult patients with...