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https://rally.massgeneralbrigham.org/study/mocci ME/CFS and post-COVID ME/CFS patients needed for an imaging and blood draw study We are seeking individuals with ME/CFS and post-COVID ME/CFS to participate in an imaging and blood draw study investigating underlying causes of cognitive control...

ME/CFS Awareness Week 2024 Symposium 1-hour symposium. Hosted by CEO Anne Wilson and with presentations from Prof. David Putrino, Dr Mark Donohoe and Dr Steven and Tori Sommer. Each of these presenters were asked to focus on “STOP” when discussing their fields of expertise. Following the...

I recall a van Campen & Visser ME/CFS study where the rate of POTS decreased with illness duration. So people could see themselves as having POTS even when they no longer satisfy the criteria.

ME Research UK Many individuals with ME/CFS report pain as a major symptom. Pain is a key feature of small fibre neuropathy – a comorbidity of ME/CFS. This condition is also associated with a wide range of other symptoms, such as ‘pins and needles’ and gastrointestinal issues. Read more about...

ME Research UK have done a summary article here: https://www.meresearch.org.uk/severe-me-in-denmark/

ME Research UK ME Research UK is delighted to announce that we have awarded funding to Dr Rob Wüst at Vrije Universiteit Amsterdam in the Netherlands for a new study aiming to identify microclots in the muscle and blood of people with ME/CFS. Dr Wüst (photo by Patrick Siemons) made waves...

Persons with Fibromyalgia and M.E. condition can receive a new benefit from next August with the amount being determined according to the severity of the condition. Speaking to TVMnews, Social Policy Ministry’s Permanent Secretary Mark Musu’ said that although the condition is not considered as...

Free full text: https://www.thepermanentejournal.org/doi/full/10.7812/TPP/23.170 Classification Accuracy and Description of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in an Integrated Health Care System, 2006–2017 Elizabeth G Liles, MD, MCR https://orcid.org/0000-0002-9669-9252...

Identifying Post-exertional Symptom Exacerbation in long covid patients - a service evaluation ABSTRACT| VOLUME 123, SUPPLEMENT 1, E64-E65, JUNE 2024 K. Owen Colwill E. DOI:https://doi.org/10.1016/j.physio.2024.04.078 Purpose: People living with long covid can experience post-exertional...

Post on ME Association website: https://meassociation.org.uk/2024/06/the-me-association-pregnancy-study-would-you-like-to-take-part/

Includes: The RACGP, as part of its HANDI resource (Handbook of Non-Drug Interventions), suggests incremental physical activity for CFS/ME with “moderate” confidence and several caveats, on a page last updated in April. Graded exercise therapy is a form of incremental physical activity...

Paper can be accessed via this link: https://t.co/oqCQPoxwt7

On Friday, June 21

Copied from New Zealand thread: New novel by recognised NZ author, David Coventry, pwME, about his experience with ME. https://teherengawakapress.co.nz/performance/

Press release from Australian government announcing $1.1 million for the NHMRC to develop ME/CFS guidelines https://www.emerge.org.au/news/media-release-backing-belief-with-better-support-for-people-with-chronic-fatigue/ OFFICIAL MARK BUTLER MP MINISTER FOR HEALTH AND AGED CARE MEDIA...

Free: https://journals.lww.com/painrpts/fulltext/2024/08000/antibody_mediated_autoimmunity_in_symptom_based.4.aspx MEETING PROCEEDINGS Antibody-mediated autoimmunity in symptom-based disorders: position statement and proceedings from an international workshop Abstract A 2-day closed workshop...

I notice that one of the authors of this Mayo Clinic paper is Stephanie Grach, the lead author of this paper: Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://pubmed.ncbi.nlm.nih.gov/37793728/