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https://www.latrobe.edu.au/news/articles/2024/release/new-myalgic-encephalomyelitis-research-funding New Myalgic Encephalomyelitis research funding Two of La Trobe University’s leading Myalgic Encephalomyelitis (ME) researchers were awarded grants worth $720,000 to conduct further studies...

Haven’t caught up on the thread so don’t know if the cost has been discussed. I saw this on Twitter Edited to add: https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/magenta/magenta-trial/faq/

Notes from a recent Bateman Horne Center support group meeting: "Minority Survival Skills: Facing Internal & External Ableism". Note: "minority" here doesn't refer to ethnic or racial groups but having a chronic illness or disability...

(1st column is GET; 2nd AM)

The #MEAction Network Our Partner Caregivers Support Group invites caregivers who are spouses, partners, or significant others of people with ME/CFS or Long COVID (and associated conditions) to join us to connect, share, and support each other. Our next virtual meeting is this Sunday, March 3rd...

[This contains quite a number of references to chronic fatigue syndrome] Open Space • Horiz. antropol. 30 (70) • Sep-Dec 2024 • https://doi.org/10.1590/1806-9983e700602 https://www.scielo.br/j/ha/a/nvbMkWCWBZ9sh5QHwcpjJjc/?lang=en# Abstract The article explores the complexity and current...

https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2322915 Aaron J. Stegner, Michelle Blate & Benjamin H. Natelson (2024) The effect of comorbid medical diagnoses on disturbed sleep in chronic fatigue syndrome, Fatigue: Biomedicine, Health & Behavior, DOI: 10.1080/21641846.2024.2322915...

Dear friend, Critical thinking, open inquiry and the freedom to question have been fundamental to the development of the scientific method and the expansion of knowledge. To explore these ideas further, we’re pleased to invite you to a series of lectures and discussions we are running in...

February 2024 International Research And Advocacy Roundup Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months...

ME Research UK – February 2024 e-newsletter https://www.meresearch.org.uk/me-research-uk-february-2024-e-newsletter/

https://batemanhornecenter.org/event/online-support-group-67/ Online Support Group March 12 @ 1:00 pm - 2:00 pm MDT 3PM ET/7PM in Great Britain & Ireland Find the time in your time zone here...

INIM Podcast - New Episode! Hope & Help For Fatigue & Chronic Illness In this episode, Executive Director, Nathalie Sloane speaks with Dr. Alison Bested, one of our leading physicians at the Institute for Neuro-Immune Medicine. They sit down and discuss the importance of validating patients'...

I thought I would set up a thread on this institute which is or was headed by Nancy Klimas Institute for Neuro-Immune Medicine · Center for Collaborative Research | Nova Southeastern University · 7595 SW 33rd St. · Davie, FL 33314-7708 · USA

A new organisation https://www.notjustfatigue.org/about ABOUT #NOTJUSTFATIGUE The mission of the 501(c)3 #NotJustFatigue is to speak the truth about ME/CFS through creative content that’s deeply personal and unapologetically emotional. Via film, photography, storytelling, and interactive...

They have paused recruitment

They don’t need any more people to fill in the questionnaire at the moment

I think if you think people can simply get better by doing a bit more until they work up to full functioning, but patients are not doing it, it’s not too hard to then start blaming patients and those around them.

https://academic.oup.com/jmp/advance-article-abstract/doi/10.1093/jmp/jhae006/7616027 The Disease Loophole: Index Terms and Their Role in Disease Misclassification Alex N Roberts The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine, jhae006...