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  1. Dolphin

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    He’s in Ireland rather than the UK but could be useful for media coverage He ran a public long Covid clinic before funding was pulled. He still sees a lot of long Covid cases privately.
  2. Dolphin

    Preprint Improving Quality of Life in Chronic Fatigue Syndrome using Antioxidant Complex Twendee M®., 2024, You

    https://www.preprints.org/manuscript/202402.0373/v1 Preprint Article Version 1 Improving Quality of Life in Chronic Fatigue Syndrome using Antioxidant Complex Twendee M®. Fukka You , Yoshiaki Harakawa , Toshikazu Yoshikawa , Haruhiko Inufusa * Version 1 : Received: 29 January 2024 /...
  3. Dolphin

    Review Dysautonomia following Lyme disease: a key component of post-treatment Lyme disease syndrome?, 2024, Adler

    Free fulltext: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1344862/full REVIEW article Front. Neurol., 08 February 2024 Sec. Autonomic Disorders Volume 15 - 2024 | https://doi.org/10.3389/fneur.2024.1344862 Dysautonomia following Lyme disease: a key component of...
  4. Dolphin

    USA: News from the Bateman Horne Center

    Lunch & Learn-Virtual Event https://batemanhornecenter.org/event/lunch-learn-virtual-event-48/ February 15 @ 11:30 AM-1 PM MST FREE Lunch & Learn A Free BHC Community Event Bateman Horne Center Presentation Topic: "Refresh Your Home Like an Interior Designer Part 2" Agenda 15 to 20 minute...
  5. Dolphin

    International: IACFS/ME - International Association for CFS/ME, IACFSME

    The International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis has set up its first social media account, on LinkedIn https://www.linkedin.com/company/iacfsme First post is "Impressions of the December 2023 NIH/NINDS Research Conference on ME/CFS and Long COVID"...
  6. Dolphin

    Review Postacute Sequelae of SARS-CoV-2 in Children, 2024, Rao

    https://publications.aap.org/pediatrics/article/doi/10.1542/peds.2023-062570/196606/Postacute-Sequelae-of-SARS-CoV-2-in-Children STATE-OF-THE-ART REVIEW| FEBRUARY 07 2024 Postacute Sequelae of SARS-CoV-2 in Children Suchitra Rao, MBBS, MSCS; Rachel S. Gross, MD, MS; Sindhu Mohandas, MD...
  7. Dolphin

    Trial Report Low-dose naltrexone and NAD+ for the treatment of patients with persistent fatigue symptoms after COVID-19, 2024, Isman

    https://www.sciencedirect.com/science/article/pii/S2666354624000115 Brain, Behavior, & Immunity - Health Volume 36, March 2024, 100733 Low-dose naltrexone and NAD+ for the treatment of patients with persistent fatigue symptoms after COVID-19 Anar Isman a, Andy Nyquist a,*, Bailey Strecker a...
  8. Dolphin

    How does post COVID differ from other post-viral conditions in childhood and adolescence (0–20 years old)? A systematic review, 2024, Minotti

    https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(24)00015-4/fulltext How does post COVID differ from other post-viral conditions in childhood and adolescence (0–20 years old)? A systematic review Chiara Minotti Carla McKenzie Isabelle Dewandel Carien Bekker Giulia Sturniolo...
  9. Dolphin

    Chronic fatigue syndrome and its response to the use of a multimodal antidepressant, 2023, Burca

    https://www.cambridge.org/core/journals/international-psychogeriatrics/article/p149-chronic-fatigue-syndrome-and-its-response-to-the-use-of-a-multimodal-antidepressant/E13A225834DBB9896ED2114B1A4A1A86 P149: Chronic fatigue syndrome and its response to the use of a multimodal antidepressant...
  10. Dolphin

    USA: Massachusetts ME/CFS & FM Association news

    https://www.massmecfs.org/news-events/66-sunday-conversations/877-sunday-conversations-feb2024 Massachusetts ME / CFS & FM Association Sunday Conversation for February: Small Group Discussions "Living with co-morbidities or other serious illnesses" Sunday, February 18, 2024, 4 p.m. Eastern...
  11. Dolphin

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    ME Research UK Post-exertional malaise (PEM), the cardinal feature of ME/CFS, is profoundly debilitating and often unpredictable. A study from 2020 has explored the experiences of PEM in individuals with ME/CFS, both in daily life and following cardiopulmonary exercise testing, aiming to gain a...
  12. Dolphin

    USA: News from #MEAction

    Saturday, February 17 CAREGIVER SUPPORT CALL (for caregivers of people with ME (myalgic encephalomyelitis), Long COVID and associated conditions) https://www.meaction.net/event/me-caregiver-support-call/2024-02-17/ 3:30pm ET/8:30 PM in Great Britain & Ireland Find the time in your time zone...
  13. Dolphin

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    100% crowd-funded long Covid and ME/CFS conference. I don’t know anything more than what has been posted on their Twitter/X account @U2Fight_World e.g. See also posts using this hashtag #UniteToFight2024
  14. Dolphin

    Open UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline Dalton, Ryback, Hillier

    Not sure I knew that this was research funded by Action for ME. Sonya Chowdhury @SonyaChowdhury Jan 26 'Healthy' Sheffield residents, please sign up to take part? This is for important @actionforme funded research being led by our Clare Francis Fellow @aryback4
  15. Dolphin

    UK: Largest study of UK health research funding released today

    Doesn't seem to include any money from the following ME charities based on a quick search: ME Research UK, Action for ME, Invest in ME Research & ME Association. https://hrcsonline.net/wp-content/uploads/2024/01/UKHRA2022_HRCS_public_dataset_v1-2_30Jan2024.xlsx Given it only refers to 173...
  16. Dolphin

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    News from NIH: NINDS is seeking feedback on ME/CFS Research Roadmap Priorities NINDS is seeking your input on the ME/CFS Research Roadmap priorities. The goal is to collect broad feedback from the public on the research priorities being developed by the Myalgic Encephalomyelitis/Chronic Fatigue...
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