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It is popular in some communities to attribute ME/CFS to "deconditioning", "unhelpful illness beliefs", and various kinds of "stress". In this piece in Slate Barry Marshall, the researcher who discovered the cause of ulcers, says the following: That seems likely in our case. Also a reminder...

Tangent: Iatrogenesis on Wiki:

The discussion of PEM is probably of special interest to the forum, especially point 3: "You can’t trust the research?" https://bodysymptoms.org/interaction/energy/

The site is notably similar to the old instruction videos for clinicians by Trudie Chalder in that they make up some condition that the patient doesn't have and then try to treat that. At least applied to ME/CFS.

Andrew Gelman discusses how bad science is perpetuated: Sociology of science: What does it take for erroneous or fraudulent claims to take hold? I think this sounds related to psychosomatic research about ME/CFS/LC. I think (1) are Wessely and Chalder and Knoop etc. Buy I think (2) is...

Response article by physicians, researchers and representatives from Swedish ME/CFS and long covid organisations: ME/CFS and postcovid should not be classified as functional conditions

7 times in 6 months?!

Hans Knoop is given as primary author for one of the articles. Is that one of his infamous ones where he neglected to report null actigraphy data?

Yes, exactly. CBT is some kind of framework and methodology, but the term itself does not specify the content and goal of the therapy. To make meaningful statements about a therapy those things must be specified. It baffles me that professional researchers allow themselves to be so sloppy and...

In 2022 @Lucibee wrote a blog post about this article and the exchange with Wessely: https://lucibee.wordpress.com/2022/11/18/muddying-the-waters/ Alas, what if Wessely and his accomplices would have listen to the critic from a clinician who know much more than he about the condition! Maybe we...

I was curious what the score for CBT was in this survey. I extracted it from Dataset S02. CBT isn't as bad as GET. About as many people had a positive response as negative response, but those who were much worse were more numerous than those who were much better. PS: I don't manage to paste...

That Metavate Consulting company really seems to be exactly as serious as their tag-line makes them sound. They seem to be a marketing company for "natural" branded supplements. I think we can interpret the review in that light. Examples of the work we have done: Andrew Scholey CASE STUDY 1 –...

Conflicts of Interest Prof Con Stough has received a grant administered by Swinburne University (Melbourne) from Kaneka (Japan) to study the effects of Co-Q10 (manufactured and supplied by Kaneka) on cognition and other outcomes. The funding for that grant pertains to the empirical clinical...

Could there be any clues to question in title in one of the studies of cerebrospinal fluid? For example: Cerebrospinal fluid immune phenotyping Central and peripheral kynurenine pathway metabolites in COVID-19 CSF immune cell alterations in women with neuropsychiatric Long COVID Edit: I had...

This survey report belongs here I think, given the abysmal score GET received. https://www.s4me.info/threads/patient-reported-treatment-outcomes-in-me-cfs-and-long-covid-2024-eckey-davis-xiao.41435/

The concepts "functional disorder" and "functional neurological disorder" seem to be on the rise. Do any of the forum members have a feeling for generally what kinds of conditions are given those diagnoses? Are these diagnoses mainly constructed for conditions like ME/CFS, long covid...

One interesting thing about the presentation is that she describes functional disorders as being the same thing as psychosomatic disorders. I'm don't think the functional people usually admit this. See page 4.

To me it seems like a bio-psycho-social perspective could be useful for ME/CFS, if it wasn't for the fact that some psychologists have made up their mind that the condition is caused by the psycho-social part. In itself BPS seems to mean simply that various aspects of a patient's like affect...

Chapter 47:

The psychosomatic and "functional" psychologists often write in their articles that their treatment is "safe". It annoys me so! Of course it is psychologically harmful to treat people for psychosomatic illness if that is not what they're having. They are psychologists! This is a thing they are...