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  1. Liie

    What the concept of psychosomatic disorders really is

    I was also diagnosed with burnout before ME/CFS! Or rather, post-viral fatigue syndrome leading to burnout.
  2. Liie

    What the concept of psychosomatic disorders really is

    Are burnout-like conditions considered to be psychosomatic? I've think I have heard that for burnout patients often start out by suspecting some physiological etiology. But it then turns out that symptoms are caused by long term stress from work, family and/or emotional factors. And symptoms...
  3. Liie

    The biopsychosocial model

    Yes, in my list of possible explanations for "recoveries" I should have included also lies-as-part-of-fraud and being-brainwashed. Maybe a majority of recovery stories that can be found online are simply not true. But, maybe I have a skewed view of humanity, but I spontaneously feel that...
  4. Liie

    The biopsychosocial model

    I don't know. There seems to regularly turn up people who claim to have had ME/CFS and who claim to be recovered.
  5. Liie

    Opinion Can the pain field learn from the functional somatic disorder field? 2025 Gormsen, Fink et al

    It annoys me so that they don't seem to dare to call things "psychosomatic" or "psychogenic" when that is what they mean. It seems disingenuous and manipulative. It can't be only us in the ME/CFS community that think so? It must be other patients, clinicians and researchers also? There...
  6. Liie

    The biopsychosocial model

    It's interesting why there are so many recovered people. And why from to many different things. It would be worth it's own thread. (Maybe there is one.) Is it because the underlying disease pass, and people relate that to whatever they were believing in at the time? Or because there are...
  7. Liie

    The biopsychosocial model

    No, and neither listen to those who have recovered from homeopathy, chiropractic ("it rebooted my immune system!"), crystals, aura therapy, hyperbaric oxygen therapy, various supplements, etc, etc.
  8. Liie

    The biopsychosocial model

    Garner and others have now and then said that "we should listen to the recovered". This reminds me of one of the classic examples of selection bias: During the Second World War the military wanted to figure out how to best improve the armor of their bomber airplanes. They investigated planes...
  9. Liie

    Life has less meaning without work, but most work would make me sick

    Maybe a little bit interesting? We build a system that is used by a hospital using Java and a database called YottaDB, which uses a database language called Mumps (I know, it's weird). I mainly do small things like scripting and server maintenance since my energy level has gotten lower. When I...
  10. Liie

    Life has less meaning without work, but most work would make me sick

    That sounds wise. Computer programming is one of my passions. The big disadvantage is that you have to be in front of a computer screen to do it.
  11. Liie

    Virtues that Mitigate the Deprivations of Chronic Fatigue Syndrome, 2025, Hartman

    And I also think you are encouraged to not give any details and say what actually helped in practice, but just say how good it was. Cult-like.
  12. Liie

    Life has less meaning without work, but most work would make me sick

    If you like programming there is the possibility to contribute to open-source software projects. It's not a job but it might be a way to feel one is contributing in an important way to outside society. There are many of us free software enthusiasts who think it's an very important thing for...
  13. Liie

    Virtues that Mitigate the Deprivations of Chronic Fatigue Syndrome, 2025, Hartman

    I'm confused as to why so many people publish recovery stories for LP. Are they brainwashed by NLP? Are Phil Parker paying them or persuading then to do it? Are they made up? The negative participant testimonials for LP always are more detailed and sound more genuine. On those LP doesn't sound...
  14. Liie

    Virtues that Mitigate the Deprivations of Chronic Fatigue Syndrome, 2025, Hartman

    Yeah, and a deceptive sales pitch as that. This person pretend to write an academic article, but withholds important information from the abstract. Dishonest humbug indeed!
  15. Liie

    Criticisms of DecodeME in the media - and responses to the criticisms

    I'm really interested in whether I'm right about this. Maybe someone of the forum members with more medical knowledge than me could comment? Maybe @jnmaciuch , @forestglip or @Jonathan Edwards?
  16. Liie

    Criticisms of DecodeME in the media - and responses to the criticisms

    I'm not an expert, but I don't think that is likely. If there was a systematic error maybe there could be non-related patterns. For example if there were a lot of people with some unrelated genetic decease that could be mistaken for ME/CFS. But if there is high error rate in the diagnosis for...
  17. Liie

    Criticisms of DecodeME in the media - and responses to the criticisms

    Isn't this criticism backwards? (Even if it were true, which if I have understood correctly it isn't.) A high error rate in the diagnosis would lead to messy data which would weaken the patterns that the analysis uncovered. But the analysis showed strong patterns. If the data were messy but...
  18. Liie

    How do you pace?

    It can be helpful to use timers for activities also, of course. If you do something that you're able to do for a little while without a problem, but which ist easy to loose yourself in for too long a time. For example, I can have telephone conversion for about 10-15 min before I start to feel...
  19. Liie

    How do you pace?

    Interesting to hear about! Exactly these kinds of small ways to trick yourself using timers I find very helpful. I suspect that it's certain kinds of personalities that are helped by using timers. Could it be people with ADHD-related traits? Or something autistic? I myself don't have any...
  20. Liie

    How do you pace?

    Okay, here is one concrete tip: Set a timer while resting, to make it easier to let go of activity. I spend a lot of time listening to podcasts and audiobooks. I have the feeling that my brain rests better if I only rests and don't do things like looking up things on my phone or other...
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