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But it's literally not. This nonsense is widely believed, including by people who dismiss all the biological evidence for ME/CFS and will gleefully point out how it contradicts some of the things they know about biology, and then they literally go "brain matter is just like muscle matter" when...

Ah well if it includes "real data on his clinical management" then who could possibly not take it as fact? You know what other condition was thought to have disappeared? Wandering womb. Let's bring all the old discredited stuff back and make medicine great again with all the modern stuff from...

There is unfortunately zero chance that it leads to a change in their stance about ME, ME/CFS, CFS, "chronic fatigue", or any variation thereof. Even with the mention of PESE in the document. They clearly understand it very little, still advise CBT and GET, and have no issues sticking to...

Although that's not quite fair. With us they simply work around it by asserting that harm is impossible, and accordingly not recording incidences of harm related to the illness, only those like hospitalizations, heart arrests, injuries and other types of possible harm from exercise. And...

Usually anyway. Not for us, that's for sure. In fact even noting any harm is met with hostility, we're just being negative, taking away people's hope. This unequal application of standards is, well, non-standard, all over the place, arbitrary, motivated, biased, and so on.

Not sure if this has been noted before. As we know, the RCGP has stood firmly against the updated guideline, rejecting it on the same basis as the PACE ideologues have, partly for having "invented" a new definition of the illness by requiring PEM/PESE, and standing firm in advising against...

It will probably come in the form of gift-wrapping around Cochrane's, uh, whatever it is they manage to put together.

I think that, in the UK anyway, the charities have been successfully bullied into being non-confrontational that they don't dare do anything anymore. The campaigns of demonization in the press and academic literature did not just target the patients, they very explicitly named and blamed the...

Problem basically solved. Life so wretched by illness that it's not worth living? Here's a puzzle game to distract you. Good grief we are in such mediocre hands. It's really the same everywhere, humans only accomplish things because of a mass of billions trying all the things for millennia...

Everything and the kitchen sink, but especially the kitchen sink, because we know. Just pure hubristic gut feeling ruining millions of lives, it's baffling. I am complete puzzled at the idea of asking psychological questions about headaches, it's so mediocre in having no scope, no ambition...

Relevant since ME/CFS is generally categorized as a "functional something or another", lots of pwME have been misdiagnosed with FND, and the same is happening with Long Covid: I guess "anything but psychologically driven" doesn't mean "all in the mind", though? There's no point giving these...

Interesting discussions on the tweet machine. Seems like some are getting bored of the whole dog whistle movement that pretends that it doesn't mean psychological, including the current fashionable trend making it up as some "network dysfunction": Another one: I guess we're supposed to...

I'm a huge physics nerd. It fascinates me. I consume so much pop physics stuff on a regular basis. Can't do the math, but I love it anyway. And one fundamental principle in physics is that theory is useless until it is confirmed experimentally. Experiments are the key to everything. And...

Nothing groundbreaking IMO. Some people have digestive troubles from eating certain foods. Avoiding those foods reduces problems caused by eating them. Diets are hard to strictly follow, but they can help. FODMAPS is one of those diets, but it is very hard to strictly follow. In a sane world...

A low FODMAP diet plus traditional dietary advice versus a low-carbohydrate diet versus pharmacological treatment in irritable bowel syndrome (CARBIS): a single-centre, single-blind, randomised controlled trial https://www.thelancet.com/journals/langas/article/PIIS2468-1253(24)00045-1/abstract...

Got a few with their sources. I guess it could be fair to say that they said it's behavioral, rather than psychological, but to me that's a distinction without a difference. I don't buy that they genuinely think it's relevant, or they wouldn't have spent this much energy inventing a concept...

Copied post Got a few with their sources. I guess it could be fair to say that they said it's behavioral, rather than psychological, but to me that's a distinction without a difference. I don't buy that they genuinely think it's relevant, or they wouldn't have spent this much energy inventing...

Oh wow I missed that detail. Holy damn this is a bit much even for Orwell.

I think that's the problem here. The open-ended "the treatments work, if you have the motivation" allows them to argue that it hasn't been exhausted, that they can always, at any moment, just choose to stop behaving the sick role. They can simply get moving and it'll be over in a week. Even...

There's also this that bothers me, the navel-gazing: As if health care is the only work environment like this. But of course it is their work environment, and so the only one they can think of that is like this. Just pure uncut freebased hubris.