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  1. Hutan

    Post-exertional Malaise in ME/CFS - Webinar for Health Professionals - Dr Cathy Stephenson

    It's not often I can recommend an ME/CFS educational resource without reservation, but I can certainly do that for this video. It is very good, and suitable for educating health professionals. Thanks @Ravn for your involvement in this very effective video.
  2. Hutan

    Protocol A Proof-of-concept Study to Evaluate the Efficacy and Safety of Rozanolixizumab to Treat [Adults] With Severe Fibromyalgia Syndrome, 2022-4, UK

    60 participant; quadruple blinding Secondary outcomes I don't fully understand the rationale of the primary outcome. It's just seven questions on how much pain interferes with function, taken out of a larger questionnaire (the Brief Pain Inventory) that includes questions specifically on...
  3. Hutan

    Concerns about composite reference standards in diagnostic research, Dendukuri et al, 2018

    They give an example of a composite reference standard: So, I think we could classify the current ME/CFS diagnostic criteria each as a composite reference standard - PEM is present; AND activity levels substantially reduced for more than 6 months; AND fatigue is present etc. The multiple...
  4. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    @Midnattsol would be great. I live in Christchurch and would be happy to have a chat with the dietician.
  5. Hutan

    Cognitive impairment in long COVID and short duration ME patients is mediated by orthostatic hemodynamic changes, 2023, Vernon et al

    From the Discussion, on cognitive impairment: I'm not sure about the idea that permanent cognitive impairment is a consequence of the disease. I think a lot of us feel that the impairment fluctuates, although normal performance often can't be sustained. It would be good if there was a study...
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