Search results

Almost as if humans had evolved to live in an environment with natural sunlight... I'm not sure if our problem is ROS and/or things to do with NO, but there are hints that both are affected by sunlight. I think a study of people with severe ME/CFS - providing exposure to morning sun or an...

We have this thread, which has the two organisations that DokaGirl mentioned and a couple of others: ME/CFS and Long Covid charities/ organisations - International and National There's a link there to a thread with Canadian regional organisations.

This problem alone invalidates the study. People who are willing to bear the label 'Functional Disorder' are much more likely to buy into the idea of past trauma being responsible for their current physical health. If you have persistent symptoms and you've had a fairly trouble-free life, you...

Thank you @Suffolkres, great news. I'll add LocalME to both our UK national and regional organisations list, and we'll also add LocalME to the open letter supporter list. How great that 52 small organisations are so well organised, and that the UK has the 52 organisations.

As Andy said, the treatment is pretty much CBT and GET. I think, there have been a lot of BPS trials, perhaps even most, where it is not made clear to the participants that such treatments are aiming to correct psychosomaticism. It would be great to get hold of the information pack and hear...

Oh that sounds sad. I think a lot of us would identify with coming to a point where we have to let go of our past profession and the aspirations and plans we had tied to that. For those with expensive annual practising certificates and other professional requirements, I imagine that point is...

Version of a comment posted in response to Dave's article. The paper said:”Due to our selection procedure we may have included patients who did not always expect a psychosomatic approach.” @dave30th said: “Are the investigators suggesting that participants were too stupid to read or understand...

Welcome to the forum @Long Covid SOS! It's great to have you here. Certainly, adding you now. Done

Chris Armstrong Chris had a bar across the bottom of his slides with the 'chapters' of his talk. And the appropriate chapter title highlighted when he was speaking to it. I thought that was a very nice innovation. Anyway. The Introduction section covered what metabolomics is and can be...

I note for the future seminars in the ME/CFS Research Roadmap webinars that these are 4 hours long. I woke up 30 minutes late and thought I wouldn't bother thinking it was just an hour, but then had a look 2 hours in and realised there was still plenty to hear. These are good seminars I think...

A reminder for the metabolism talk coming up a bit later

Great tweet @Andy, thank you.

See also The alpha-2A-adrenergic receptor (ADRA2A) modulates susceptibility to Raynaud's syndrome 2023 Tervi et al Interesting stuff. There's movement away from regarding Raynaud's as just a response to cold and emotional stress. Low blood sugar could be causing attacks. That makes sense, as...

This thread is for a list of sub-national Norway ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Norwegian ME-association Austagder -- aust-agder@me-foreningen.no Norwegian ME-association...

This thread is for a list of sub-national US ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Massachusetts ME/CFS & FM Association - forum thread Minnesota ME/CFS Alliance New Jersey ME/CFS...

This thread is for a list of sub-national UK ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Chester MESH self help group Leeds ME Network ME North East Norfolk and Suffolk ME Patient/Carer...

The Science for ME committee has written a letter of support for an ME/CFS research initiative. If a researcher wanted a letter of support from the forum, I expect the committee would consider a request. If it became a regular thing, we could perhaps develop some formal criteria. As Kitty...

I've put the data into an excel spreadsheet . There is no relationship between the data in Table 2 and Table 3 for PSC1. The abstract correctly reports a positive difference between intervention and controls at 12 months for the people classed as moderate of 0.91. (I make it 0.92: change...

One and a half cups of cooked oatmeal or three packets of instant oatmeal are reported to provide 3 g of beta-glucans. Intakes of around that much are regarded as good for heart health. This trial had participants receiving 250 mg of beta-glucan daily. So, I make that the equivalent of 4...

Ah, ok, thanks SNT